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Hello, I am a 27 years old guy who suffers from basically everything I read on this forum.
floaters
STRONG photophobia
loss of meibomian glands
burning
dryness
Everything I am doing at the moment feels like it does nothing or little to nothing:
_supplements: omega 3, collagen, hyaluronic acid, about to try probiotics, read somewhere that they may help
_diet: I recently abolished alcohol, carbs, gluten. I also drink like crazy since years and doesn't help much. Actually, I think all this water gave me a very bloated stomach that won't go away now
_eye drops: tried everything, no luck, but at least I stopped using ones with preservatives since the general consensus is that they are bad so I now use the preservatives free ones and also other drops that are supposed to reduce inflammation, everything recommended/prescribed by doctors
_hot water: I find relieving taking hot showers, staying in wet environments etc, tried warm compresses and they did not work
_glasses: I am now the guy who ALWAYS wear sunglasses, I must use them everywhere including home, by now I can stay without them only at night and if I'm outside with no strong/normal artificial lights. Driving is starting to get difficult. Photophobia is maybe my problem number one, then dryness/discomfort (I wake up at nights regularly because of it), then floaters
Also tried: a foam that one of the many doctors I visited prescribed me, I had to wash my eyes (closed) with it. IPL. Lipiflow. Every eye drop that exist. Spent thousands of euros on drugs, visits, gasoline to get to those incompetent doctors. I can afford it but it's no fun and more importantly it's all a waste of time and it doesn't work!!
My right eye is especially bad, it's a mess full of floaters that I can see even if I look at the screen of my computer, dimmed completely, while wearing sunglasses (yea it's THAT bad), it is do dry that I have to use eye drops constantly, it's the main reason why I have to use sunglasses at home (the left eye can still handle indoor lightning without sunglasses just fine), it's so inflamed that it's always half closed by now and I'm starting to lose eyesight too on that eye only!
It's not like the leftone is that much better, but at times I wonder if wearing a patch/bandage on my right eye for a month or two could heal it a bit.
I am sorry for the little wall of text, pretty sure you read similar stuff every single time you browse this forum, I still have hope that somedays someone will connect the dots and lead me towards the right direction... but at the moment I feel like doctors just don't even care enough and they all just give me standard stuff/procedures and are not interested in an holistic approach. I tried telling them my story several times, a lot of little/not so little things that have or had to do with my eyes (took finasteride for several years and I believe it had an effect on the eyes, when I was younger I used to have tough times when I was crying a lot every single day and I fear this may have damaged the eyes a lot, I try to find correlations with stressful periods/depression and aggravating symptoms... the general answer is "ok I see. Here at xyz we do this, this or this treatment". Very disappointing and a waste of time and money)
Unfortunately I spend many hours in front of screens both in my free time and for work reasons. I can do something for the former but not so much for the latter, but if I had the certainty that screens are a major issue and I would feel MUCH better without them, I'd drop them in a heartbeat, even if that means staying without a job at all.
I also strongly suspect I have Sjogren since I also have very dry mouth and throat all the time and I basically must sip water all the time and when sleeping I must keep the nose under the blankets so I breath hot, humid air. I also suffer from weird fatigue when doing even moderate physical activity despite being young and otherwise healthy. Of course no doctor told me I have this stuff because they wouldn't even care to connect the dots, but it would be pointless anyway since I read that there's no cure for Sjogren too, so who cares if I have it or not.
I don't know what else to say... I read this forum a bit in the past, but not too much... I want to read it further and try the stuff you tried too. For now I want to try probiotics, I want to keep my gluten free diet, I want to try restasis, I'd like to try also testosterone drops or something like that, and I would love that laser stuff for removing the floaters... these are basically the stuff left to try and then I could say that I tried basically everything. also if you could recommend me, here or in private, any good doctor anywhere in Europe, that would be amazing.
floaters
STRONG photophobia
loss of meibomian glands
burning
dryness
Everything I am doing at the moment feels like it does nothing or little to nothing:
_supplements: omega 3, collagen, hyaluronic acid, about to try probiotics, read somewhere that they may help
_diet: I recently abolished alcohol, carbs, gluten. I also drink like crazy since years and doesn't help much. Actually, I think all this water gave me a very bloated stomach that won't go away now
_eye drops: tried everything, no luck, but at least I stopped using ones with preservatives since the general consensus is that they are bad so I now use the preservatives free ones and also other drops that are supposed to reduce inflammation, everything recommended/prescribed by doctors
_hot water: I find relieving taking hot showers, staying in wet environments etc, tried warm compresses and they did not work
_glasses: I am now the guy who ALWAYS wear sunglasses, I must use them everywhere including home, by now I can stay without them only at night and if I'm outside with no strong/normal artificial lights. Driving is starting to get difficult. Photophobia is maybe my problem number one, then dryness/discomfort (I wake up at nights regularly because of it), then floaters
Also tried: a foam that one of the many doctors I visited prescribed me, I had to wash my eyes (closed) with it. IPL. Lipiflow. Every eye drop that exist. Spent thousands of euros on drugs, visits, gasoline to get to those incompetent doctors. I can afford it but it's no fun and more importantly it's all a waste of time and it doesn't work!!
My right eye is especially bad, it's a mess full of floaters that I can see even if I look at the screen of my computer, dimmed completely, while wearing sunglasses (yea it's THAT bad), it is do dry that I have to use eye drops constantly, it's the main reason why I have to use sunglasses at home (the left eye can still handle indoor lightning without sunglasses just fine), it's so inflamed that it's always half closed by now and I'm starting to lose eyesight too on that eye only!
It's not like the leftone is that much better, but at times I wonder if wearing a patch/bandage on my right eye for a month or two could heal it a bit.
I am sorry for the little wall of text, pretty sure you read similar stuff every single time you browse this forum, I still have hope that somedays someone will connect the dots and lead me towards the right direction... but at the moment I feel like doctors just don't even care enough and they all just give me standard stuff/procedures and are not interested in an holistic approach. I tried telling them my story several times, a lot of little/not so little things that have or had to do with my eyes (took finasteride for several years and I believe it had an effect on the eyes, when I was younger I used to have tough times when I was crying a lot every single day and I fear this may have damaged the eyes a lot, I try to find correlations with stressful periods/depression and aggravating symptoms... the general answer is "ok I see. Here at xyz we do this, this or this treatment". Very disappointing and a waste of time and money)
Unfortunately I spend many hours in front of screens both in my free time and for work reasons. I can do something for the former but not so much for the latter, but if I had the certainty that screens are a major issue and I would feel MUCH better without them, I'd drop them in a heartbeat, even if that means staying without a job at all.
I also strongly suspect I have Sjogren since I also have very dry mouth and throat all the time and I basically must sip water all the time and when sleeping I must keep the nose under the blankets so I breath hot, humid air. I also suffer from weird fatigue when doing even moderate physical activity despite being young and otherwise healthy. Of course no doctor told me I have this stuff because they wouldn't even care to connect the dots, but it would be pointless anyway since I read that there's no cure for Sjogren too, so who cares if I have it or not.
I don't know what else to say... I read this forum a bit in the past, but not too much... I want to read it further and try the stuff you tried too. For now I want to try probiotics, I want to keep my gluten free diet, I want to try restasis, I'd like to try also testosterone drops or something like that, and I would love that laser stuff for removing the floaters... these are basically the stuff left to try and then I could say that I tried basically everything. also if you could recommend me, here or in private, any good doctor anywhere in Europe, that would be amazing.
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