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Has anyone been diagnosed with CCh in their superior bulba? Not quite SLK (but similar), as the staining looks like 2 green lines above my cornea that are parallel with my eyelid.
When first observed by my specialist he was like, 'huh that's neat' and didn't say much more about it.
Shortly after that, I developed blinking pain which VitAPos has resolved for me in the past. But this time, the blinking pain remained despite tear overflow due to being quadriplugged. My eye aren't dry anymore, and my corneas/ocular surface do not burn. I have had persistent blinking pain for 3 months now, and 1 month ago it became painful 24/7. ESPECIALLY when I close my eyes. Making sleep impossible! I have to sedate myself and put ice on my face and if I'm lucky I get 5 hours.
My doctor proposed we do a botox injection to relieve the eyelid pressure which will reduce friction. However, this is not a permanent solution and I read that overtime, frequent botox injections could weaken the muscle permanently and end up with droopy eyelids. At this point, I've pretty much convinced myself I need AMT surgery to correct the bulbar folds. I have my next appointment this friday and just trying to hang in there. I also started taking rebamipide which has great results for treating lid wiper epitheliopathy specifically, but given that I have these folds in my bulba I am beginning to worry it will not be as effective in my case
The only thing that helps with the inflammation/burning pain in inner eyelid is Azithromycin, but it doesn't address the friction so it always comes right back. I can't find hardly anything on the internet even mentioning superior CCh and how its treated and its relationship to lid wiper epitheliopathy.
When first observed by my specialist he was like, 'huh that's neat' and didn't say much more about it.
Shortly after that, I developed blinking pain which VitAPos has resolved for me in the past. But this time, the blinking pain remained despite tear overflow due to being quadriplugged. My eye aren't dry anymore, and my corneas/ocular surface do not burn. I have had persistent blinking pain for 3 months now, and 1 month ago it became painful 24/7. ESPECIALLY when I close my eyes. Making sleep impossible! I have to sedate myself and put ice on my face and if I'm lucky I get 5 hours.
My doctor proposed we do a botox injection to relieve the eyelid pressure which will reduce friction. However, this is not a permanent solution and I read that overtime, frequent botox injections could weaken the muscle permanently and end up with droopy eyelids. At this point, I've pretty much convinced myself I need AMT surgery to correct the bulbar folds. I have my next appointment this friday and just trying to hang in there. I also started taking rebamipide which has great results for treating lid wiper epitheliopathy specifically, but given that I have these folds in my bulba I am beginning to worry it will not be as effective in my case
The only thing that helps with the inflammation/burning pain in inner eyelid is Azithromycin, but it doesn't address the friction so it always comes right back. I can't find hardly anything on the internet even mentioning superior CCh and how its treated and its relationship to lid wiper epitheliopathy.
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