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**Rebecca Petris** · 14-Mar-2022, 07:10

Hello and welcome! So glad you've joined us. Wow, that is a lot to deal with! I'm glad you're considering PROSE or sclerals. There are always more things to try.

Couple of questions 1) Humidity level indoors? You mention you feel better outside. 2) Have you tried moisture chamber glasses for improved comfort?

We have some Zoom support groups if you're interested, in fact the young people's one meets tomorrow.
https://www.dryeyefoundation.org/calendar

Kind regards
Rebecca

**ostas12345** · 14-Mar-2022, 08:20

yes, air humidity level must be important, I bought new hygrometer and made some measurements
There is indeed low humidity level in my house, my hygrometer shows 25-30% relative air humidity in my house all the time even in rainy day. When it is raining outside my hygrometer can show 70-95% relative air humidity. But I noticed that in hot, sunny days my hygrometer also shows quite low air humidity 30-40% and oddly my eyes still feel better outside than inside, maybe some of my measurements are incorrect, maybe in rainy days my eyes feel better outside than in sunny days

I haven't tried moisture chamber glasses thoroughly yet. Do You buy some custom fit moisture chamber glasses by some measurement, customization process? Where can You buy custom fit moisture chamber glasses? Are there such glasses available in Europe (apart from those in the UK)?

**Rebecca Petris** · 14-Mar-2022, 13:45

I tend to notice my eyes getting less comfortable any time my office is less than 35%. But also I see many people on social media where some feel better outside, some inside, where the reasons just aren't very obvious.

Moisture chambers are kind of hard to figure out without trying them on. But sometimes you can email pictures to the company that makes them and they can help. For example if you get Ziena from 7eye in California, they are very helpful.

In Europe, you might want to look up WileyX dealers. Those are more favored for outdoors than indoors. But the other thing you can do for indoors is simple clear plastic safety goggles. I have some cheap ones that I love. I use them while driving sometimes.

Do these moisture chamber glasses constantly emit some water and increase air humidity in small space around your eyes?

The only ones I know of that do that are Eye Eco's Moisture Release Eyewear. https://www.eyeeco.com/sunglasses-.html That's a good product.

**ostas12345** · 15-Mar-2022, 01:53

Thank You very much for the useful information about moisture chamber glasses, I will try to get some custom chamber glasses soon

Could I ask about scleral lenses like PROSE?
If You don't have time to write about it then of course You don't have to, I can search for this information on my own in this forum and maybe other places
are there PROSE lenses available in Europe? are there other very good scleral lenses like Eye Print Pro, LaserFit or Dr Gemoules lenses or similar available in Europe?
How does that insurance covering cost of PROSE lenses work in USA?
is there some kind of similar insurance cost covering of scleral lenses in Europe? (sorry for asking You that if You are from USA)

**Rebecca Petris** · 15-Mar-2022, 18:11

Originally posted by ostas12345 View Post

Could I ask about scleral lenses like PROSE?
If You don't have time to write about it then of course You don't have to, I can search for this information on my own in this forum and maybe other places
are there PROSE lenses available in Europe? are there other very good scleral lenses like Eye Print Pro, LaserFit or Dr Gemoules lenses or similar available in Europe?
How does that insurance covering cost of PROSE lenses work in USA?
is there some kind of similar insurance cost covering of scleral lenses in Europe? (sorry for asking You that if You are from USA)

Sure. I am not very knowledgable about resources in Europe (I'm in USA) so If you're on Facebook you might want to join our group My Big Fat Scleral Lens. There are many European members (and some doctors) who can share more.

PROSE is not available in Europe, only US, Canada, India and Japan if I remember right. LaserFit is only in Texas so far as I know. I am sure there are EyePrintPro providers in europe - I would suggest going to their website https://eyeprintpro.com/ and contacting them.

Insurance is very complicated! I don't have any simple answers. Some people get help from insurance, some don't. But you can ask any scleral lens provider for help with this (their office will know more).

**ostas12345** · 16-Mar-2022, 03:51

Thank You very much for the useful information, Madam

ahh, so it seems that LaserFit and Dr Gemoules scleral lenses are the same thing
ok, I will try out EyePrintPro scleral lenses first, then perhaps others in the USA
Thanks for the information, I joined facebook group My Big Fat Scleral Lens recently, I'm going to communicate on that group too

**wissen1** · 22-Apr-2022, 12:49

Hey ostas12345,

can you describe a bit more detailed how your dry eyes and in general dryness of mouth and skin evolved over the years? I also suffer from dry eyes and dry skin for a long time now. Schirmer's test is <5mm but every other Sjoegrens test turned out negative. Doctors advised against a gland biopsy because all the other tests didn't even point in the direction of SS (or any other autoimmune disorder). Oh I also don't have a dry mouth.
Oh btw how are you today?

**ostas12345** · 25-Apr-2022, 05:41

Hello Wissen

I'm still alive but my eyes still may feel bad sometimes, especially when staring at the screen for too long time
My mouth feels dry sometimes, especially at nights, it makes speaking a bit more difficult. not a big problem

surprisingly my schirmer test was high, above 20 mm, I think my lacrimal glands can produce a lot of tears when stimulated, but generally I think they don't produce much tears because I feel that my eyes are dry, without any moisture layer covering them

I heard some stories of people who also have all negative tests for Sjogren's disease and high schirmer score but gland biopsy ultimately reveals that there indeed is Sjogren's disease. I heard that there is a new more trustworthy test based on abnormal proteins - SJO test, not quite common yet
You can try to do a gland biopsy test just to check out the result

**ostas12345** · 25-Apr-2022, 05:45