Doctors intrested in DES in Europe?

[sunshinelover]

Hi!

Anyone knows of any GOOD and interested doctor of DES in Europe?
Stockholm would of course be even better, but anywhere in Europe fould be fine. Otherwise I must go to NYC.
I feel my condition is deteriorating so fast I have to see someone knowledagble quickly!

[Anthony16]

I would go to Dr L in NYC if i were u.Im also from Europe,and no longer waste my time and money going to doctors here.`they havent a clue.I would probably only see 5 or 6 doctors worldwide for severe Meibomian Gland Dysfunction.
Dr L,Toyos,Pflugfelder,******,Tseng.

[sunshinelover]

Thanks for your reply Anthony!
Yes, I am thinking of Dr L, I sent an email two days ago not to waist any time, although the trip and everything would cost me fortune. if I can manage to keep my work that is worth it! Have you been to see any of those doctors yourself?


Yea, the doctors I have seen here, have not had a clue...

[patrick]

professor baudouin ,paris...

[sunshinelover]

professor baudouin ,paris...

Yes, I saw something here on him. Have you visited him? Does he spend enough time with you? How do I contact him?

SO greatful for your replies!!

[Anthony16]

Yes,i saw dr L a couple of times now.What is your situation?Do u need a diagnosis or have u tried everything?If u need a diagnosis and to be put in the right direction,then he is worth it.However,i should say i come from an upper middle class background and understand its a huge sum to invest if u dont earn much money.

[sunshinelover]

Frustrating, I try to reply but the system won't let me. This is a check..

[sunshinelover]

Now it worked! Only that I had written such a long post before and now its gone.
Anyway, got a message from dr L and he is charging 400 USD, it IS a lot. But worth it if I can get better and continue working. Today I have well paid job , but God knows for how long, I have been on sick leave and now on vacation.
Yes, I diagnose would be great, i am afraid the docs haven'Ļt been intreseted in this at all, instead I think the misdoagnoses my vision problems and performed a cross-linking (very painful cornea treatment) in order to stop vision from deteriorating, but now I am convinced that the vision problems was rather caused by dryness, and not the oppisite as I thought initially.
Dr L seems to think that this is not LASIK induced (had it 25 years ago) but an inflammation, since both vision probs and irritation goes away with steroids. But no doc here has bothered to check anything carefully, just put in plugs and say use drops!!

[littlemermaid]

Sunshinelover, If they've done cross-linking maybe that's an added complication some dry eye docs may not be comfortable with and I'd be asking Rebecca who she thinks would combine surgery knowledge with dry eye skill - maybe if it's US, take a look at the Tear Film & Ocular Surface Society lists. I wonder if it's possible to phone or email Prof Baudouin's team for advice.

[patrick]

Yes, I saw something here on him. Have you visited him? Does he spend enough time with you? How do I contact him?

SO greatful for your replies!!

Hello sunshinelover,

I visited him a few years back and i think he is very knowledgeable. He personally does not spend very much time with you,but his assistant will do a very thourough examen which he will afterwards evaluate with you.
I got the contactinformation from another member here who was kind enough to share her experiences and knowledge with me at the time. (if you read this,thanks again toril!
Now its my turn and i will provide you with the necessary information to contact him:
Professor christophe baudouin,centre hospitalier national d'opthalmologie des quinze- vingts,paris.
You can reach him by sending his assistant an email; alambert@quinze-vingts.fr
There is also a short informative film on youtube in which he explains his approach to dry eye disease. The search term you must use to find it is; dry eye disease by dr. Baudouin.

Good luck!
Hope you will find a solution to your problems quickly

Patrick...

[sunshinelover]

Hello sunshinelover,

I visited him a few years back and i think he is very knowledgeable. He personally does not spend very much time with you,but his assistant will do a very thourough examen which he will afterwards evaluate with you.
I got the contactinformation from another member here who was kind enough to share her experiences and knowledge with me at the time. (if you read this,thanks again toril!
Now its my turn and i will provide you with the necessary information to contact him:
Professor christophe baudouin,centre hospitalier national d'opthalmologie des quinze- vingts,paris.
You can reach him by sending his assistant an email; alambert@quinze-vingts.fr
There is also a short informative film on youtube in which he explains his approach to dry eye disease. The search term you must use to find it is; dry eye disease by dr. Baudouin.

Good luck!
Hope you will find a solution to your problems quickly

Patrick...

Thank you Patrickm
Thatīs great, I will write him and see whta he says. After all, Paris is a much cheaper and faster travel option than NY so I can start
with that if it is possible to get an appointment there. I think my condition is getting worse and it is so annoying that I have to wait for many months to get an appointment here i Sweden despite the fact that I already am a patient in the leading eye hospital! But they are all mainly surgeons and specialised in different things.

Little mermaid, I just did cross linking on one eye so far, but they want to perform the other one as soon as possible since the cornea is very thin. But I will not do that now until I have got this condition under control. The eye that is not cross linked is the worst dryness wise, but the other one is unfortunately detriorating in vision so fast that it scars me, and at my last appointment in June I did not even get to se the doc, only an assistant that measured corneal flatness. That my vision is so much worse doesn't seem to matter... It must be due to the dryness if it cannot be explained otherwise. I donīt know what to think.... I cant beleive i was so lucky just a half year ago, with good vision and no dry eye problems....

[sunshinelover]

By the way, did Dr B in France come up with any good solutions for you Patrick? Has your eyes become better and more manageable?

Littlemermaid, have you also seen dr B?

[sunshinelover]

Oh no, Dr Baudoin in Paris can not see me until mid December!!! In the mean time they refer to a Swedish doctor, who in fact did my IOL surgery perfect, but saw nothing wrong and then referred me to the cross-linking specialist who now have referred my to someone else who is supposed to treat DES. And that guy I think in fact is the one to blame for my cvataract in the right eye due to prescibing steroid treatment in the ninties in order to stop progression of nearsightedness. I don't trust anyone right now...

I think I cannot wait until December, I don't think I can manage to work for that long, I am still on vacation now.
Anyone who can tell more about how Dr Baudouin go about with his patients?

[joanna]

Hi sunshinelover, sorry you have to wait so long but in fact it's not that long till December, in France you wait 4 months to see an ordinary eye doctor

I am also waiting to see someone from dr Baudouin's team. I have my appointment in mid-November (I took it in the beginning of May!).
But I don't think I will even see the professor himself, it's someone from his team who will see me...
Let's hope it's worth waiting!

[littlemermaid]

Sunshinelover, We haven't seen Dr Baudouin's team but I'm wondering if they would see you sooner if they had more information about your history and that your eyesight is deteriorating so fast. We find in UK that an appointments secretary just books the next available consultation without a doctor assessing the urgency. This means a wait of up to 18 weeks and by then it can be too late. If we ask a doctor or optometrist to assess the urgency and write to the consultant, or appeal to the specialists direct ourselves, they see the patient sooner.

Joanna, We have this terrible waiting too. The best way I've found to fast-track is through an optometrist urgent referral, or turning up with eye inflammation and pain at the hospital emergency eye clinic.

Hope you both get good information and progress.