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Hi All
Just wondering if anyone can help.. At my last Moorfields appointment I was told there is a manufacturing issue with Cyclosporine 0.06% eye drops (which I believe is the UK Restasis equivalent). I was given Optimmune ointment instead which I haven't found helpful, I think because as well as watery dry eyes I’m told I have posterior lid margin disease and blocked meibomian glands in all four lids. Applying a greasy ointment to the lids seemed to counteract all my daily unblocking attempts right from the start, with the result that my eyes felt drier than when I wasn’t using it and my vision was blurred at times (on the plus side it was a really nice moisturiser for the skin around my eyes and I may even have lost a few small crows’ feet). Does anyone know, is it still worth trying Cyclosporine if Optimmune has this effect and why has it stopped being made? Also, I've heard it makes the eyes very red, does this stop after a while or will the redness last for as long as you are using it? All the Doctors I’ve spoken to about it have stressed that it does sting quite a lot so although I need more tears in order to increase my functionality, I’m not sure I should hope that this will be the big cure (if I can get it). If anyone has thoughts or comments on this it would be very appreciated.
While I am on-line, I’m happy to share my recent experience of Lymecycline (which had been my other last hope) for anyone curious about using this, although I imagine the effects will differ a lot depending on the user. I was prescribed one Tetralysal 300mg capsule per day (equivalent to 408mg Lymecycline) and had noticeable side effects from early on. After a day or two it felt like I had a dry cracker wedged down my throat, then a few more days in, I realised that overnight I seemed to look 6 months pregnant. I do seem prone to inflammation in general and it’s fair to say I felt uncomfortable while taking this drug! Other unexpected effects were that the surfaces of my teeth felt peculiar, sort of rough and dry and I had also woken up a couple of times in the night with a start, almost in a panic, which hasn’t happened before. I’ve never had such a noticeable reaction to a medicine and I did check back to the list of side effects on the package leaflet and there are a lot, and very varied. Fortunately within a short time of stopping usage everything was back to normal. My local Eye Doctor was wary about prescribing it at all until all other avenues had been explored, although my GP thought it worth a try and the Moorfields Doctor I saw recently felt it was a shame about the side effects as evidently it can be really helpful in 'melting' oil blockages and keeping them flowing, in cases like mine. So it might be worth a try for anyone with badly blocked oil glands but I would say you might have to try it before pinning your hopes on it.
Best wishes to all and thanks in anticipation of your help.
Just wondering if anyone can help.. At my last Moorfields appointment I was told there is a manufacturing issue with Cyclosporine 0.06% eye drops (which I believe is the UK Restasis equivalent). I was given Optimmune ointment instead which I haven't found helpful, I think because as well as watery dry eyes I’m told I have posterior lid margin disease and blocked meibomian glands in all four lids. Applying a greasy ointment to the lids seemed to counteract all my daily unblocking attempts right from the start, with the result that my eyes felt drier than when I wasn’t using it and my vision was blurred at times (on the plus side it was a really nice moisturiser for the skin around my eyes and I may even have lost a few small crows’ feet). Does anyone know, is it still worth trying Cyclosporine if Optimmune has this effect and why has it stopped being made? Also, I've heard it makes the eyes very red, does this stop after a while or will the redness last for as long as you are using it? All the Doctors I’ve spoken to about it have stressed that it does sting quite a lot so although I need more tears in order to increase my functionality, I’m not sure I should hope that this will be the big cure (if I can get it). If anyone has thoughts or comments on this it would be very appreciated.
While I am on-line, I’m happy to share my recent experience of Lymecycline (which had been my other last hope) for anyone curious about using this, although I imagine the effects will differ a lot depending on the user. I was prescribed one Tetralysal 300mg capsule per day (equivalent to 408mg Lymecycline) and had noticeable side effects from early on. After a day or two it felt like I had a dry cracker wedged down my throat, then a few more days in, I realised that overnight I seemed to look 6 months pregnant. I do seem prone to inflammation in general and it’s fair to say I felt uncomfortable while taking this drug! Other unexpected effects were that the surfaces of my teeth felt peculiar, sort of rough and dry and I had also woken up a couple of times in the night with a start, almost in a panic, which hasn’t happened before. I’ve never had such a noticeable reaction to a medicine and I did check back to the list of side effects on the package leaflet and there are a lot, and very varied. Fortunately within a short time of stopping usage everything was back to normal. My local Eye Doctor was wary about prescribing it at all until all other avenues had been explored, although my GP thought it worth a try and the Moorfields Doctor I saw recently felt it was a shame about the side effects as evidently it can be really helpful in 'melting' oil blockages and keeping them flowing, in cases like mine. So it might be worth a try for anyone with badly blocked oil glands but I would say you might have to try it before pinning your hopes on it.
Best wishes to all and thanks in anticipation of your help.
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