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  • Guest's Avatar
    Guest replied
    Originally posted by Milo007 View Post

    Yes definitely the inflammation can exist inside the glands and that's what makes your glands malfunction.

    IPL would help calm down the inflammation temporarily but if the source of inflammation is not eliminated then it will keep coming back. It's so important to find out the source of inflammation and address it.

    https://www.researchgate.net/figure/...fig3_276854904

    https://www.researchgate.net/figure/...fig3_266151685
    I know from my allergy bumps them rubbing against my eye causes inflammation, but this is under control as I've been told. So I'm maybe thinking its further in? I've had 7 seconds before with another allergy drop fish oil and warm compress I think. So I am addressing the allergy part considering these people I see now brought it to light once I first met them. But now its sorta like, i thought IPL would get me to 10 seconds from the last time i had 7/8 but now it's still at 7, happy just want my eyes to be comfortable yknow ??

    Leave a comment:


  • epicjinx
    replied
    Originally posted by SAAG View Post

    I hope he only meant that his clinical signs are worse. Because if he had the nerve to try to suggest that his eyes FEEL worse than yours - which he has zero way of knowing - that's not right. Clinical signs do NOT always match up with the severity of symptoms a patient feels.



    If he's making you feel like you're "obsessing", he's either too arrogant to see that something could be going on with your eyes that he doesn't understand, or, he doesn't know what else to do for you and is too proud to admit it (therefore is trying to blow you off by saying you should be fine now).

    Either way, it's not acceptable.

    One's signs and symptoms don't always match - this has been shown time and time again. Your doctor should know this, and if he doesn't, he's a fool.

    If the way your eyes feel is interfering with your ability to complete your studies at university, interfering with the normal activities of daily living, and/or interfering with your ability to work, there is still a problem and it needs to get investigated further, be treated further, and taken seriously. While I completely understand that docs can't always fix us, the least he could do is keep trying. Because his insinuations that you're "obsessing" and that your "obsessing" is the only thing stopping you from living a normal life, are a complete cop out.

    So trust yourself, and do NOT - not for 1 second - doubt yourself. If your eyes don't feel right, something is still going on that needs to be addressed. It's not always easy to figure out the cause. It's not always easy to figure out an effective combination of treatments. Sometimes one is unlucky and it can't be fixed with currently available treatments (I'd put myself in this category). But nonetheless, a good doc will stick by your side and continue to at least TRY to help you. Granted, sometimes they run out of treatment options... but they should still stick around so they can be there to prescribe new treatments as they come to market.
    Yes, I agree with the clinical signs and symptoms I don't know why he brought it up, possibly to relate no idea. And he did suggest some things just it didn't feel nice when he assumed that I was obsessing, so I again agree with you. I'm just sorta waiting again to find out hopefully via pain specialist about why I still have it (trying to see if my antidepressants effect me for hyper sensitivity)... it's not painful. Just uncomfortable.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Originally posted by epicjinx View Post

    He does have dry eyes and tells me his allergies are worse.
    I hope he only meant that his clinical signs are worse. Because if he had the nerve to try to suggest that his eyes FEEL worse than yours - which he has zero way of knowing - that's not right. Clinical signs do NOT always match up with the severity of symptoms a patient feels.

    Originally posted by epicjinx View Post

    Yeah he kept telling me that I'm obsessed when I've been concerned over other issues in my life aka being jobless going uni. But then says 10 seconds is normal for most, but then I said about I know I have to hit ten seconds. He's happy with my progress so am I, just sometimes feels like he's assuming I'm obsessing. I just want comfort
    If he's making you feel like you're "obsessing", he's either too arrogant to see that something could be going on with your eyes that he doesn't understand, or, he doesn't know what else to do for you and is too proud to admit it (therefore is trying to blow you off by saying you should be fine now).

    Either way, it's not acceptable.

    One's signs and symptoms don't always match - this has been shown time and time again. Your doctor should know this, and if he doesn't, he's a fool.

    If the way your eyes feel is interfering with your ability to complete your studies at university, interfering with the normal activities of daily living, and/or interfering with your ability to work, there is still a problem and it needs to get investigated further, be treated further, and taken seriously. While I completely understand that docs can't always fix us, the least he could do is keep trying. Because his insinuations that you're "obsessing" and that your "obsessing" is the only thing stopping you from living a normal life, are a complete cop out.

    So trust yourself, and do NOT - not for 1 second - doubt yourself. If your eyes don't feel right, something is still going on that needs to be addressed. It's not always easy to figure out the cause. It's not always easy to figure out an effective combination of treatments. Sometimes one is unlucky and it can't be fixed with currently available treatments (I'd put myself in this category). But nonetheless, a good doc will stick by your side and continue to at least TRY to help you. Granted, sometimes they run out of treatment options... but they should still stick around so they can be there to prescribe new treatments as they come to market.

    Leave a comment:


  • Milo007
    replied
    Originally posted by epicjinx View Post
    I'm just wondering, if inflammation can be inside the glands? But confused as I thought IPL would help reduce inflammation.
    Yes definitely the inflammation can exist inside the glands and that's what makes your glands malfunction.

    IPL would help calm down the inflammation temporarily but if the source of inflammation is not eliminated then it will keep coming back. It's so important to find out the source of inflammation and address it.

    https://www.researchgate.net/figure/...fig3_276854904

    https://www.researchgate.net/figure/...fig3_266151685

    Leave a comment:


  • Topher3
    replied
    This disease is so intricate and complex that even with all the research it is hard to find the cure. I could not say what’s causing your TBUT to be low, there’s way too many variables and even then it’s just speculation. One thing that might be of high probability is inflammation, but what’s causing it sometimes it’s almost impossible to find. there’s too many chemicals and hormones and vitamins and minerals in the body something is off, and whether we can control that or not who knows.

    Leave a comment:


  • epicjinx
    replied
    Originally posted by Topher3 View Post
    I mean it’s your body, and if it doesn’t feel right then somethings up. Just because it’s good for him doesn’t mean it’s good for you. You’re the one that has to live with it. Don’t stop for anything less than perfection, if he’s got a problem with obsession he’s in the wrong profession. Eyes are no joke, I’m so ****ing sick of these doctors and their attitudes.
    I totally agree. It's just been 5 years of going round in a circle getting so close but not at the normal 10 seconds. It's just strange, he says 10 seconds is normal for everyone but when I question why I'm not at it, he gave me a few options. I appreciate that but made me come of obsessive... when I've barely thought about my eyes. I didn't use optimel before my appointment so, so it's 7 seconds. I'm just wondering, if inflammation can be inside the glands? But confused as I thought IPL would help reduce inflammation.

    Leave a comment:


  • epicjinx
    replied
    Originally posted by Guest View Post

    Hi Epicjinx,

    How long did you use Optimel to clean your eyes?
    I have permenant red veins in my eyes. Warm compressing made it worse. Most optometrist told me that it is impossible to get it worse with warm compressing but nevertheless I got it.

    You mentioned that Optimel helped you. Could you please share what kind of redness did you have and how did it help? I used Optimel about a month but didn't see much result. So perhaps need to use it longer.
    I don't use it to clean my eyes? I put it on my eyelid margin as it states to. It normally takes a month, I've been using it for 2 months ran our then bought it again. I only use it maybe twice a day, it helps with comfort. Redness it only stings when applying then that's it. Hope this helps with your question.

    Leave a comment:


  • epicjinx
    replied
    Originally posted by Topher3 View Post
    I mean it’s your body, and if it doesn’t feel right then somethings up. Just because it’s good for him doesn’t mean it’s good for you. You’re the one that has to live with it. Don’t stop for anything less than perfection, if he’s got a problem with obsession he’s in the wrong profession. Eyes are no joke, I’m so ****ing sick of these doctors and their attitudes.
    He does have dry eyes and tells me his allergies are worse. Despite mines being yearly... I was obsessed last year now I'm just hoping to hit that Mark for myself. He said he'd write a letter on Tuesday but I assume he's busy writing letters to lots of other people's Gps.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Originally posted by epicjinx View Post
    Hello, so did the IPL. All my glands are open and clear, but I still have dry eyes. Tbut 7 seconds. Optremist stresses that it's me being over thinking it's just uncomfortable blinking, using everything I've been asked of;fish oil, did IPL, allergy eye drops (allergies still slightly there), optimel.
    Hi Epicjinx,

    How long did you use Optimel to clean your eyes?
    I have permenant red veins in my eyes. Warm compressing made it worse. Most optometrist told me that it is impossible to get it worse with warm compressing but nevertheless I got it.

    You mentioned that Optimel helped you. Could you please share what kind of redness did you have and how did it help? I used Optimel about a month but didn't see much result. So perhaps need to use it longer.

    Leave a comment:


  • Milo007
    replied
    Originally posted by Topher3 View Post
    I mean it’s your body, and if it doesn’t feel right then somethings up. Just because it’s good for him doesn’t mean it’s good for you. You’re the one that has to live with it. Don’t stop for anything less than perfection, if he’s got a problem with obsession he’s in the wrong profession. Eyes are no joke, I’m so ****ing sick of these doctors and their attitudes.
    Well said. We need more doctors with MGD. Then only they can get a feel of the helplessness.

    Leave a comment:


  • Topher3
    replied
    I mean it’s your body, and if it doesn’t feel right then somethings up. Just because it’s good for him doesn’t mean it’s good for you. You’re the one that has to live with it. Don’t stop for anything less than perfection, if he’s got a problem with obsession he’s in the wrong profession. Eyes are no joke, I’m so ****ing sick of these doctors and their attitudes.

    Leave a comment:


  • epicjinx
    replied
    Originally posted by Milo007 View Post

    MCG - Moisture Chamber Glasses. You should get them to help your eyes heal better.

    I think inflammation is a definite problem for you. From my personal experience I can tell that inflammation regulates the volume of lipid secretions directly. So if your glands are alright and all open and you can bring down the inflammation your TBUT should increase even further. MCGs will help decrease inflammation if used on a regular basis. You may try low dose doxycycline (20mg-50mg) once daily for a month or two and it will certainly help with inflammation.

    Did you find out the allergens for you?

    Chronic use of anti allergic medications are actually detrimental to your eyes.
    I've been told I have no inflammation but that doesn't add up to the fact my eyes are still slightly dry. I've never been prescribed doxy I don't know why it's something I haven't tried. Allergies are most likely dust or animal dander. Got told it's useless trying to get allergy testing to find out as it can be a struggle trying to avoid allergens.

    I sometimes take breaks when needed from the drops.

    Leave a comment:


  • epicjinx
    replied
    Originally posted by Topher3 View Post
    Yes, 7 seconds is definelty not a normal TBUT anything under 12 pretty much could be cause of concern. I don’t understand how your doctor can keep saying everything fine, milo is probably right with some kind of systemic immune inflammatory markers affecting things.
    Yeah he kept telling me that I'm obsessed when I've been concerned over other issues in my life aka being jobless going uni. But then says 10 seconds is normal for most, but then I said about I know I have to hit ten seconds. He's happy with my progress so am I, just sometimes feels like he's assuming I'm obsessing. I just want comfort

    Leave a comment:


  • Milo007
    replied
    Originally posted by epicjinx View Post

    In response no they have none of that, all open secreting nice clear oil and got all the blocked glands unblocked (wasn't many 5 glands on one eye lid, on both eyes). MCG? I've been using optimel which helps eyelid redness in reducing it. I was on a steroid a few years ago, maybe 2 by now(?), it was FML and it had no effect on me due to inflammation only being present due to allergies. But ketofall seems to be working alot better now but my last allergy drop stopped working didn't know why (catacrom). I've never had tetrcyclines introduced to me, probably due to the fact it's MGD or was. As I'm grade 0 (according to my optremist). It's just, I found out I had allergies and then tried alot but still a few left to try. Fish oil helps counter dryness for my allergy drops, and had IPL clear out blockages and keep it going nicely.

    I've said yo my optremist that antidepressants never gave me dry eye before ever, but now that I have dry eye due to computer use, I'm not sure if it's causing problems with my oil glands too. As I've tried majority of regular methods. I did ask for inflammadry but got told due to no inflammation being present it was useless for it. So sorta wondering, what else could be the issue.
    MCG - Moisture Chamber Glasses. You should get them to help your eyes heal better.

    I think inflammation is a definite problem for you. From my personal experience I can tell that inflammation regulates the volume of lipid secretions directly. So if your glands are alright and all open and you can bring down the inflammation your TBUT should increase even further. MCGs will help decrease inflammation if used on a regular basis. You may try low dose doxycycline (20mg-50mg) once daily for a month or two and it will certainly help with inflammation.

    Did you find out the allergens for you?

    Chronic use of anti allergic medications are actually detrimental to your eyes.

    Leave a comment:


  • Topher3
    replied
    Yes, 7 seconds is definelty not a normal TBUT anything under 12 pretty much could be cause of concern. I don’t understand how your doctor can keep saying everything fine, milo is probably right with some kind of systemic immune inflammatory markers affecting things.

    Leave a comment:

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