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A letter was sent to my mother's house last month stating that Dr. Rosenthal would no longer be treating patients at the BFS, and that other doctors would be looking after us upon visits. I found it odd that he would retire without any notice to his patients, but it was understandable due to him getting up there in age. Yesterday I received a PM from another DET member who stated that Dr. R was actually terminated due to his pioneering pain studies (which we are both part of). Tonight I am going to visit my mother's house to pick up that letter so I could read it for myself. Can anyone on here confirm the situation with Dr. R. I would be heartbroken if the details are indeed true.
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FOR WE WALK BY FAITH, NOT BY SIGHT (2 Corinthians 5:7). -
I am very sad to hear that. I saw Dr. Rosenthal May 2010 and have been in touch with him until early this year when I got slammed with other serious health problems. I'm surprised that I didn't receive a letter from BFS about this.
I will call BFS when the hurricane is over to get more information on who I will now see for corneal neuralgia. I am kind of freaking out right now because I don't know of any other doc that actually cares about corneal neuralgia....what are we supposed to do now?! If you have any information on Dr. Rosenthal or what BFS is up to now or whether or not they are continuing corneal neuralgia studies, please let me know. If it is sensitive information, please PM me.
I have not checked in to DEZ in quite some time now. Does anyone know if there are any docs out there who are interested in corneal neuralgia? I hope it doesn't turn into a forgotten condition. Thanks so much! -
Here you can find other names who care about cornea neuralgia: http://www.aao.org/publications/eyen...007/cornea.cfmOriginally posted by odydnas View Post
I heard that Rosenthal left BFS but not the researches.Comment
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I think it best not to get into the causes of Dr. Rosenthal not being at BFS if you don't mind... not trying to be pc, but there are some directly conflicting stories about it and so I think it would be most courteous to all concerned to just not discuss it in the public forum.
I had a long talk with Dr. Jacobs recently about this and BFS have provided me with a lot of information about what's going on in corneal pain research... much more than I knew of.... I am planning to set up a whole section for it on DEZ as a resource, and I'm afraid I've been dragging my heels because I've been in the middle of getting things ready to move to our homestead (finishing this week). I will most definitely get it all up in the course of November though. I found the extent of information and interest in the topic in the medical community very encouraging. It's a different world out there than it was ten, even five years ago.Originally posted by odydnas View PostRebecca Petris
The Dry Eye Foundation
dryeyefoundation.org
800-484-0244Comment
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THanks bakunin for the link! I will look into that. Ok, that gives me some hope!
Rebecca, of course I don't mind that we don't get into the causes of why Dr. R isn't at BFS. I removed my question from my post, as I meant it as a rhetorical question that written in the middle of the anxiety and fear I felt when I read the news. I understand that this could possibly be a sensitive issue that shouldn't be discussed in a public forum. Do you know if Dr. Jacobs will be taking over corneal neuralgia care at BFS or is BFS not planning on providing care for that anymore?
Good luck with moving into your homestead and I look forward to the new section and information!Comment
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Rebecca, thanks for your comments. A corneal pain section would be great. I believe that Dr. Rosenthal wrote the pioneering "Pain without the Stain" article didn't he?
A catchy title for which he should be honored. BillComment
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Yes, a more specific neuropathy section would be great.
I didn't read theses piecies yet, but they seem interesting:
Neural basis of sensation in intact and injured corneas
http://www.lasikfraud.com/articles/n..._sensation.pdf
CORNEAL NERVES IN REFRACTIVE SURGERY AND DRY EYE
https://helda.helsinki.fi/bitstream/...pdf?sequence=1
I think ophtalmologists that study and do research on cornea neuropathy are a totally different kind of ophtalmologists. First of all, if they choose that research area is because they care about the patient in the first place (what the patients feel and wish, their symptoms and not merely what a doctor can see). The rest of the ophtalmologists take care of vision. If your vision is ok, if there aren't signs of possible vision loss, it is almost the same going to an opthalmologist or going to a cardiologist, it is simply not their business, and you will get frustrated and helpless. Even neuro-ophtalmologists treat just vision loss due to nevous system issues.
The fact is that the sufferers from cornea pain (wihout stain) don't have a doctor (a medical specialty) to go to get their problem treated.
Rosenthal and others like him are real pioneers. What they are doing is not merely research, but a shift in the ophtalmology view of their subject: from vision (the funcionality of the eye) to the relation between the eyes and the well-being of the patient.Comment
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Rebecca,
Just wondering if you have been able to put up any of the info on corneal pain research yet? I have recurrent corneal erosion for close to 4 years now -have had 3 unsuccessful surgeries and tried everything. Now diagnosed with corneal neuralgia. On Neurontin, but not really helping the pain much and I am not tolerating the side effects.
Anyone else out there with corneal neuralgia? What are you doing to help with the pain?
Thanks,
cebethComment
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Hi Cebeth, Sorry to hear about the Neurontin. I found the bookmark for the pain resources Rebecca posted: http://www.dryeyezone.com/talk/conte...Pain-resources
Hope there's something helpful in the list.
BlinksComment
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I will put my two cents in, not really sure if we are talking the same thing or not. I had Lasik in early 2000 and it was a disaster. Vision-wise, dry-eye wise and most of all I inherited trigeminal neuralgia in my left eye (my worst eye). This pain is excrusiating and I had it for 9 years after that. I developed Sjogrens along the way about 2006 was diagnosed. About 2009, I was put on Lyrica to see if it would improve some of my neuropathies suffered in my legs, hands and facial areas. Well, after a few months, I noticed the pain in the neuralgia eye has gone away. It's not really gone away, but it's very much less compared to before Lyrica. Lyrica helps my other neuropathies too. Lyrica is expensive, even with insurance, but one of my must haves. LucyDon't trust any refractive surgeon with YOUR eyes.
The Dry Eye QueenComment
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Thanks to both Blinks and Lucy. I did not have lasik, but developed recurrent corneal erosion after an injury 3 1/2 years ago. I now have constant pain in and around that eye and cheek and have been diagnosed with corneal neuralgia. The corneal specialist recommended either Neurontin or Lyrica. I don't have insurance and yes Lucy, the Lyrica is expensive. If I have to take it I will try to get some assistance from Pfizer.
Lucy, did you ever try Neurontin before the Lyrica?Comment
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