Vicki, I too was anxious, scared and frustrated when this DES first hit me nearly a year ago. I was diagnosed about 7 months ago. I am no expert, but I have tried most every treatment there is, other than scleral lenses or surgery. It took me considerable time and lots of support from the people here to accept that I have a chronic condition for which there is no cure. It can only be managed. If I may add one thing to Rebecca's wonderful post, pain management also includes lifestyle changes/lifestyle management.
By this I mean, altering activities that flare the DES. For example, I used to spend at least 12 hours per day sitting at my computer, often with very little in the way of breaks. I even ate some of my meals in front of the thing. Now, I spend no more than 30 minutes, if that, at a time in front of the computer before I go do something else for 30 minutes or more. This is because computer use really flares my DES. Another thing I do is what I don't do. I no longer use the fan or AC in my car. If I must because of extreme heat, I only use the floor blowers and put the fan setting on low. I don't walk outside on windy days. I wear wrap-around sunglasses to protect my eyes from the circulating air. I don't drink wine more than rarely, as alcohol flares my DES. I avoid certain restaurants and stores that have blowers that irritate my eyes. I don't go to casinos or any other place there is cigarette smoke. A biggie here, I quit smoking! I suggest that you get in touch with your DES. Figure out what makes it worse. By doing that, you will learn how to manage it and hopefully reduce the severity of the symptoms. These are the very things I would expect Dr. Tseng or any other DES specialist will ask you about.
By this I mean, altering activities that flare the DES. For example, I used to spend at least 12 hours per day sitting at my computer, often with very little in the way of breaks. I even ate some of my meals in front of the thing. Now, I spend no more than 30 minutes, if that, at a time in front of the computer before I go do something else for 30 minutes or more. This is because computer use really flares my DES. Another thing I do is what I don't do. I no longer use the fan or AC in my car. If I must because of extreme heat, I only use the floor blowers and put the fan setting on low. I don't walk outside on windy days. I wear wrap-around sunglasses to protect my eyes from the circulating air. I don't drink wine more than rarely, as alcohol flares my DES. I avoid certain restaurants and stores that have blowers that irritate my eyes. I don't go to casinos or any other place there is cigarette smoke. A biggie here, I quit smoking! I suggest that you get in touch with your DES. Figure out what makes it worse. By doing that, you will learn how to manage it and hopefully reduce the severity of the symptoms. These are the very things I would expect Dr. Tseng or any other DES specialist will ask you about.
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