"the anterior segments are healthy" - blatant lies!

[poppy]

I need to vent yet again. Just got a copy of last letter from eye doc. This consultation was not about dry eye, I wanted to get the inside of my eyes examined so I didn't expect him to examine or comment on my dry eye. However what he's written is completely unacceptable. He just decided to pop in the statement that "the anterior segments are healthy", making no comment about dry eye or anything else that is going on with the surface of my eye. "Anterior segments are healthy" is a blatant lie even for an eye doc who couldn't be bothered to put in dyes, do schirmers test etc. I have seen many eye doctors and it is very clear that I have clinically severe dry eye. In fact I had been to see another doc at the same practice who told me I have very bad dry eye which NEEDED treatment medically. I have constant erosions/abrasions, keratitis, corneal scar, major scarring of surface of eye, a TBUT of one second and mgs that don't work at all. As if it wasn't hard enough to talk to my GP about eye problems without having my GPs head filled with this rubbish.

So for those of you who are being told your eyes are "fine" I just wanted to let you know that you may be being blatantly lied to like I and my GP have just been.

[DCRdryeye]

Hi poppy, not only is it unacceptable, it's unethical, and I'd go as far as saying ILLEGAL. What I am trying to do is gain a long list of stories like yours on my blog and show it to the Medical Board. Although you mentioned you didn't want to add your experience my in blog in the past, I highly encourage you to simply "copy and paste" the above into my blog: http://www.blockedtearductsurgeryadult.com/?p=91

I also had an apparent "dry eye" expert in Melbourne who looked at my eye with a slit lamp and put his thumb up saying, "Nothing wrong with the surface of the eye". And since my ocular surface is fine, he assumes I'm not dry and not experiencing significant disomfort. How lame, how wrong, how little they know about this condition is mind boggling.

Several months ago I agreed to go to Uluru with some friends for next week. I am fretting the carrying of my cyclosporine and steroid drops in ice, then since I can't get sunburnt whilst on doxycycline I have to look around for loose thin long sleeved shirts, strong 30% sunburn cream. Then there's the sweat from the forehead dripping onto the foam of my moisture chambers, ice gel covers for eyes, oral pain killers when the eyes get too bad, etc....YET MY OCULAR SURFACE IS NORMAL!!! they have no idea!!! If you have any ideas for my upcoming trip to Uluru it would be appreciated.

[poppy]

Hi poppy, not only is it unacceptable, it's unethical, and I'd go as far as saying ILLEGAL. What I am trying to do is gain a long list of stories like yours on my blog and show it to the Medical Board. Although you mentioned you didn't want to add your experience my in blog in the past, I highly encourage you to simply "copy and paste" the above into my blog: http://www.blockedtearductsurgeryadult.com/?p=91

I also had an apparent "dry eye" expert in Melbourne who looked at my eye with a slit lamp and put his thumb up saying, "Nothing wrong with the surface of the eye". And since my ocular surface is fine, he assumes I'm not dry and not experiencing significant disomfort. How lame, how wrong, how little they know about this condition is mind boggling.

Several months ago I agreed to go to Uluru with some friends for next week. I am fretting the carrying of my cyclosporine and steroid drops in ice, then since I can't get sunburnt whilst on doxycycline I have to look around for loose thin long sleeved shirts, strong 30% sunburn cream. Then there's the sweat from the forehead dripping onto the foam of my moisture chambers, ice gel covers for eyes, oral pain killers when the eyes get too bad, etc....YET MY OCULAR SURFACE IS NORMAL!!! they have no idea!!! If you have any ideas for my upcoming trip to Uluru it would be appreciated.

Hi DCR, I decided to submit a post to your blog after all. Best wishes for your trip to uluru, hope you do have a good time, sorry I don't have any helpful suggestions for you

[DCRdryeye]

I poppy I saw the thread and and it's worderd PERFECTLY and thanks so much to contributing to my efforts. The more real life stories we get, the more the authorities will listen. It could even become apart of a current affair program on TV because it's these type of stories that grabs their attention. Oh gosh, we better pretty ourselves up for the cameras
Thanks so much again poppy.

[mgshutterbug]

DCR, where do you live? I live in the U.S.. in Maryland. I have a horrendous story I can add as well. It doesn't have to do with dry eye, it has do with a macular hole. I repeatedly told the corneal specialist I was seeing for RCEs (which he was treating horrendously btw), that I had just lost central vision in my "good" eye. It wasn't a huge loss, but enough that I couldn't read whatever letter I was focusing on in 12 point type. Could only see the letters peripherally. He kept telling me month after month, that my ABMD was the cause of that, that somehow the filaments which broke free were lining up centrally, and blocking vision. If I wasn't so beside myself because of severe RCEs as a result of neurosurgery I'd just had, paralysis, numbness, and pain in half my face I would have been able to think more logically about his statement. But I TRUSTED him. He was from a well-known university, though later I realized that their ophthalmology clinic was small, and woefully short of skilled specialists. I was seeing their corneal specialist, and a neuro-opthalmologist there. Unfortunately I stayed in treatment with him a year. By the time I switched to Johns Hopkins Wilmer Eye clinic, it was too late to save the central vision I'd lost. I was diagnosed with a macular hole, and had a vitrectomy shortly thereafter. But the bordering cells had died, so there was no return of that vision. The vision loss was directly linked to his incompetence.