I can't cope anymore

[NotADryEye]

NotADryEye - I think I'm going to put the MG probing to one side at the moment. Mr O'Brart is one of only a few in the country who will do it and if he says I don't need it then I'm not going to push to have it done. Obviously it does concern me that there may be obstructions but there are not many people around that would know better than him for me to ask!


He said that they did trial oral Azithroymcin instead of Doxy but he thinks Doxy is more effective so I'm back on that now....

lizlou29, absolutely. I understand. It might be something to revisit in the future.
I'm on Doxy, low dose, only 20mg daily. Seems to help a lot.

[littlemermaid]

He is trialling Azithromycin drops on patients at QVH

How is he dosing this? Azithromycin is retained over 5 days in tissue (http://eyetubeod.com-topical-azithromycin-for-the-treatment-of-blepharitis) so I think it's normally 5 or 6 days to clear, then off, or staggered on/off with gaps, like we did, eg Efficacy of azithromycin 1.5% eye drops in childhood ocular rosacea with phlyctenular blepharokeratoconjunctivitis, Doan et al. 2013

I remember a video here in which Dr Marguerite McDonald used Azasite just wiping it closely along the eyelid margins, so that might be an option if it's difficult. We were told not to buffer with saline, but it's been tempting.

[lizlou29]

He said it's only licensed for 5 days but wants me to do one drop a day for 4 weeks them I see him at the end of the course. Eyes are horrible again today so I'm not really looking forward to the burning but I'll give it a go. Curious about the dosing now you've said that.

[littlemermaid]

It did good work for us, though, dealing with chronically clogged and sometimes infected glands. He just means licensed as an antibacterial. Paediatric, we're nearly always 'unlicensed' but if they are using OK elsewhere I'm fine with that, especially with someone that experienced.

[NotADryEye]

I have done the same with Azasite, just the tiniest amount on the lashes, where I would wake up with crusting. It helped, just putting it on the lashes and the inflammation in my eyes, inner lids and margins would subside. And like you lizlou, I am terribly sensitive to the stuff. It stung so badly the first time I used it that I stopped breathing.

[lizlou29]

Thanks for the advice. Think I'll try it on one eye first tomorrow night to be on the be on the safe side. Are you actually meant to put it in the eye or on the lashes?

[NotADryEye]

My doctor had me put it on my lashes. I just couldn't stand it in my eyes or on the lid margins. But I'm not sure what you are specifically trying to treat. I suppose you could try it on your lashes first and see if it does anything. But it's hard for me to say.

And yes, starting with one eye is a terrific way to keep yourself sane. Somehow we can stand the pain better if it is only in one eye. You can get away from the pain by focusing on the other eye. But when it's in both eyes, it's horrific. You just can't direct your focus anywhere else.

[littlemermaid]

Are you actually meant to put it in the eye or on the lashes?

In the lower conjunctival sac, ie gently pull down lower eyelid, drop in there, close eyes for a bit. As normal.