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My eyes have been extremely bad for about 2.5 years. I started out with severe dry eye (and dry mouth) which I strongly believe was triggered by Retin A and Tazorac use. I now have very painful corneal neuropathy characterized by burning, raw feeling, itchy, dry and gritty eyes. I have tried just about everything, including Gabapentin, Lyrica and now Cymbalta which I cannot tolerate. I wear moisture chamber glasses all of the time and an EyeSeals mask at night. Nothing helps EXCEPT STEROID DROPS. I have been on steroid drops for about 2 years now and I want to wean off. My doctor feels I should stay on them because they help and nothing else does. If I try to taper, my symptoms become 20 times worse, completely unbearable and I cannot function at all. I had to quit my job a year ago and my short term disability has ran out. Does anyone have any experience with tapering off of steroids after long term use? If I can get through the pain/rebound affect, will I eventually get back to "normal" bad? Again, my doctor who is a professor at a teaching facility says steroids are safe to use long term in severe cases as long as my eyes are monitored for pressure. Still, I am worried about the risk of cataracts, glaucoma and adverse affects from the preservative BAK.
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