Pretty crazy idea. Eyeball removal

[Meibum Ian]

It took me 6 doctors before I found one that realized I was sleeping eyes open. As soon as I remedied that I got even better.

Sorry to take this off-topic. Just wondering how you dealt with this? It's almost certainly a factor in my case but is not really being addressed.

[edmunder]

deep_dry_eye Dowork123 I see a doctor on wednesday for blood serum drops. The other doctor who didnt have medical clearance told me that doctor doesnt like to give them but i try to explsin the pain level im dealing with.

I will also ask for asizite antibiotic. Should i do that and then go do lipiflow after a week or so? Any idea how fast it could help liquify the oil?

Today i did a long warm compress at 50C and then got a good flow out of my right(not as bad) but my left eye i couldnt see much. But i only have a 5x mirror. My 20x mirror is on the way.

I used your technique today Dowork. Heat. Express. Then wash out with lots of drops. Blinking exercise for 1-2 minutes. Then i do lid cleaning with a qtip in collidial silver and rub back and forth along the lid edge. Then my goggles go back on. Im at essentially every minute with big goggles on.

My mother has an infrared heat lanp im going to lay under that for a while each day. Put the heat/light on my eyes and close my eyes.

Audiobooks have been a great boon. I have an app through my library.

[deep_dry_eye]

deep_dry_eye Dowork123 I see a doctor on wednesday for blood serum drops. The other doctor who didnt have medical clearance told me that doctor doesnt like to give them but i try to explsin the pain level im dealing with.

I will also ask for asizite antibiotic. Should i do that and then go do lipiflow after a week or so? Any idea how fast it could help liquify the oil?

Today i did a long warm compress at 50C and then got a good flow out of my right(not as bad) but my left eye i couldnt see much. But i only have a 5x mirror. My 20x mirror is on the way.

I used your technique today Dowork. Heat. Express. Then wash out with lots of drops. Blinking exercise for 1-2 minutes. Then i do lid cleaning with a qtip in collidial silver and rub back and forth along the lid edge. Then my goggles go back on. Im at essentially every minute with big goggles on.

My mother has an infrared heat lanp im going to lay under that for a while each day. Put the heat/light on my eyes and close my eyes.

Audiobooks have been a great boon. I have an app through my library.

I found a bigger w serum drops isnt finding a dr to prescribe it, any MD can prescribe it, its more like finding a local pharmacy that makes it.

I was on topical Azithromycin (Azyter PF which is better, not AzaSite) and it took a few days for my glands to express all its gunk out. I had a lot of blurry vision as the thick oil came out when I was on Azithromycin.

You can also concurrently get on doxy 40mg, doxy is a generic medication and should cost only a tens of dollars per month even in the US. I however found doxy to be less effective than Azithromycin.

I would be vary on lying underneath an infrared heat lamp long term, you need to do targetted heat treatment or else you can damage other parts of your eyes.

[Guest]

Sorry to take this off-topic. Just wondering how you dealt with this? It's almost certainly a factor in my case but is not really being addressed.

I'm still dealing with it...so here's what I've done so far.

Bought the eyeseals from the dry eye shop, used them and the first night I got the worst erosion I've ever had. Hot, searing pain for about 6 hours. Why did that happen? I push my head upward when I sleep. I'm tall so I'll push my feet off the end of my bed. That caused the strap of the eyeseals to pull down and then the eyeseals themselves pull up toward my scalp. This did two things, the lower part of the seals opened AND it help my upper lid open and pulled back for hours. So that was a fail lol.

Then em I tried just a silk sleep mask, I added humidifiers again (removed them after winter) and sealed a vent above my head when I sleep. Actually I sleep with my head at the foot of my bed regardless of that vent being sealed. So the issue with the sleep mask is that it pushes on my eyes a bit too much. So I now I literally take a soft shirt, fold it 4 times longways like a bandana and put it lightly over my eyes and put the excess tshirt behind my head so it stays put and I sleep in my back. That's HUGE...I am a side sleeper and I mash my face into the pillow. I cannot do that anymore.

I'm realizing my left eye is so bad because during my bodybuilding years, I took a nap every single day for 45-120 mins on my couch with my cat....that went on for 9 years. Pretty much every day and the only side I slept on, was my left side. It was constantly open just enough to let bacteria into the gland. I wish I knew then what I know now. I thought my corneal abrasion made my left eye worse, it's backward...my left eye being dryer made the abrasion worse. If I hadn't had dry eyes to begin with, the dust I got in my eye would have cleared. It has a hundred times before in the past. Hope that helps.

My next steps are to possibly try an ointment...I can't use gels they literally hurt, I can't explain it. Right now I literally wake up a few times a night and just put a few drops of theratears or serum in my eyes, piss and go back to bed. But I need something that will stay on the eye longer and provide better mechanical protection. I may also try Vaseline and cut out curckes of Saran Wrap and place it over my eye. I have some options I think I'll eventually find a better solution but just the t shirt, humidifier, sealed vents and tears have been doing amazing.

[edmunder]

Dowork123 i had a corneal abrasion in China and i started putting coconut oil in my eyes at night . I wear rubber goggles over that and the goggles are full of steam when i wake up. Its been s real adjustment sleeping on my back and NOT moving. I was always a side sleeper. I tore my left labrum lifting weights so for a long time i liked to sleep on the right shoulder. Maybe thats why my left eye is worse.

[Guest]

deep_dry_eye Dowork123 I see a doctor on wednesday for blood serum drops. The other doctor who didnt have medical clearance told me that doctor doesnt like to give them but i try to explsin the pain level im dealing with.

I will also ask for asizite antibiotic. Should i do that and then go do lipiflow after a week or so? Any idea how fast it could help liquify the oil?

Today i did a long warm compress at 50C and then got a good flow out of my right(not as bad) but my left eye i couldnt see much. But i only have a 5x mirror. My 20x mirror is on the way.

I used your technique today Dowork. Heat. Express. Then wash out with lots of drops. Blinking exercise for 1-2 minutes. Then i do lid cleaning with a qtip in collidial silver and rub back and forth along the lid edge. Then my goggles go back on. Im at essentially every minute with big goggles on.

My mother has an infrared heat lanp im going to lay under that for a while each day. Put the heat/light on my eyes and close my eyes.

Audiobooks have been a great boon. I have an app through my library.

So happy you're getting serum. Ok, there's so much to talk about. I was on azasite for two weeks. Apply one drop to your clean finger and then spread it out on your opposing finger (it's like a gel), pull the lid down and swipe across the lid on that eye, then close your eye and rub into lashes. Repeat with other finger and other eye. That was once a day, then at night I would use avenova to clean the lids, ask for a hypochlorous acid spray if he doesn't offer you one. It helped me a lot but it didn't fix my problem. He never mentioned compress to me (one of the reasons I moved into Kaufman) so a week later I'm back with an inflamed eye, says apply tears you're good, still not good though. So again I'm back in a week with huge inflammation. The guy finally gives me the steroid and restasis. Once I took the steroid I could finally do the compress right. That's when I actually got better, then serum, then the nocturnal lagopthalmos...now I feel kinda normal.

I think they will prescribe a steroid and or atibiotic after lipiflow. Making sure you sleep eyes closed after lipiflow is HUGE in order to keep the lid margin from drying and not allowing that meibum to express. But I am disqualified from lipiflow because I have a basement membrane dystrophy. So I'm not sure on all the details. I know you can be a bit sore after but considering what you're going through I'm sure you don't mind.

Im hoping the eye routine helps you...I think once you get the bacterial load under control you'll feel so much better. I genuinely thing if you have lid disease you should consider doxy. But I'm sure a good doctor will go over all that with you...if not, ask about it.

[edmunder]

Dowork123 im on doxy 100mg now. For 6 months ive been taking it. I actually took zpack axithromycin in taiwan to clean out big styes a year ago. It worked very well.

[Guest]

Dowork123 i had a corneal abrasion in China and i started putting coconut oil in my eyes at night . I wear rubber goggles over that and the goggles are full of steam when i wake up. Its been s real adjustment sleeping on my back and NOT moving. I was always a side sleeper. I tore my left labrum lifting weights so for a long time i liked to sleep on the right shoulder. Maybe thats why my left eye is worse.

You had the abrasion at night during sleep or during the day? I cannot find goggles that don't tear off. I wanted to use swimming goggles but have heard they raise interocular pressure. My lower back is pretty lit up from deadlifts and squats for 15 years. So I get very uncomfortable on my back. I tore my rotator and meniscus and it was NOTHING compared to this.

[Guest]

Dowork123 im on doxy 100mg now. For 6 months ive been taking it. I actually took zpack axithromycin in taiwan to clean out big styes a year ago. It worked very well.

That's great, does it upset your stomach or give you any bad sides?

[Rebecca Petris]

So sorry Edmunder things are so rough

I agree i could see improvement after i do IPL and lipiflow many times. The terror is that i wont. Or the pain i will live with until then.

Yeah it really is fear of pain continuing that takes people down in this situation. I think it's really, really important to take life in very short increments when you're in that much pain. Whatever relieves pain, do more of, set small achievable goals.

Re removing eye which you've mentioned, I've known a couple of acoustic neuroma patients who did. Regrets afterwards though as treatments emerged that would have helped. Eyes are soooo worth preserving.

[edmunder]

The last few days the intense pain seems to be inflamed eyeball thst is pressing on a nerve in the back if my eye. Thats how it feels.

Anyone know what to do to calm the inflammation. Im taking some tramadol to combst the pain and i become lucid again but without it all i think about is suicide.

Im ok right now after half a tramadol and cold pack on the eye.

My syptoms are not thst bad to be causing this level if pain. My right eyeball is very tender and feels swollen with lots of pressure.

Its strange looking at it in this light instead of intense pain. I can feel it coming on in my foot gor some reason. Like i feel the pulse in my foot get more distinct and a bit uncomfortable then the eye nerve pain comes. But my eye isnt red and very little cornea staining.

[hopeful_hiker]

edmunder Sorry to hear about your pain! Although dry eyes can cause a ton of different symptoms, I would err on the safe side and check pressure, uveitis, and other conditions. Steroids such as Alrex and Lotemax are usually for acute cases of inflammation (i.e. not long term), but I am sure you know about them already.

I have taken steroids 4 times daily for about two weeks at most. Or three weeks? Can’t remember. At that time I had intense pain in a certain spot even when I closed my eyes, yet all the doctors could see was a tiny bit of inflammation on sclera. Steroids helped me get rid of that pain and I still don’t know why I had it.

[farmgirl]

My doc said that's scar tissue and we should probe. But he also said, if you're doing fine, let's not do anything and save that for when things get worse.

Why would you wait until you get worse, why not do it now and you might get better and never get worse again now that you know how to look after your eyes properly...not sure I get that logic.

[deep_dry_eye]

Why would you wait until you get worse, why not do it now and you might get better and never get worse again now that you know how to look after your eyes properly...not sure I get that logic.

probing is considered quite invasive by some drs, sometimes even with scar tissue, the glands can still express oil. if probing can be avoid, many drs try and avoid it.

[Guest]

Why would you wait until you get worse, why not do it now and you might get better and never get worse again now that you know how to look after your eyes properly...not sure I get that logic.

Deep dry eye nailed it...I'm doing pretty good, I'm feeling pretty good, my only issue is slight double vision due to the EBMD. When my tear film is stable, it's not as bad. So yeah, my dr said if you can deal with the slight visual issues, let's wait. My glands still express oil and it's too invasive to risk if I'm not in pain currently. He said the same with doxy...if the compresses and my regimen is working, let's keep that in our back pocket for when you're older and things naturally progress downward. I'm 38 just throwing that out there.