Partying with dry eyes

[SirDryEye]

This is going to seem a controversial topic but does anyone know any recreational drugs that can be used with dry eyes? Alcohol seems to dehydrate me and leave my eyes very dry sore and red. I need something just to take the edge off things so I can forget about my problems...

[SirDryEye]

Also I want to get scleria lenses but live in the Uk, is this even possible. Any recommendations?

[deep_dry_eye]

I think you should seriously understand and consider your dry eye disease. Recreational drugs will most likely hurt your dry eyes long term. This is a life long disease, you need to manage it properly, and sometimes that means giving up certain aspects of the life you previously had.

[SirDryEye]

I’ve tried giving up that aspect of my life. I went completely sober for 3 months and eat very healthy and avoided anything that could harm my eyes even work. I completely stopped playing video games for the last two months and limited screen time. This has made practically no difference to my eyes if anything my eyes are getting worse. I’ve starting wearing goggles at night and even this makes little difference. So might as well just live and have fun otherwise there’s no point living if you have no enjoyment in ur life.

[deep_dry_eye]

You don't need to justify your lifestyle to me, you need to justify your lifestyle towards yourself. Learn about the consequences of your actions. Correlation does not imply causation.

Doing things like avoiding recreational drugs, video games, and eating healthy will probably not hurt your eyes, and may help you improve long term. Everyone has a different philosophy of life, but I enjoy life and I have lots of fun without needing to play video games or do recreational drugs.

You're still young, you still have a lot of hope in recovering if you can onto the right lifestyle and proper medical treatments.

[SirDryEye]

No one actually wants to help someone with dry eyes. Doctors don’t give a shit about helping us they just want to shove pointless procedures down our throats. I’ve told regular people I have dry eyes and they didn’t even acknowledge how bad it is it’s like telling someone you have a meer cold. If I beat this people are gonna see a different side to me. Dry eyes has turned me into a monster. All I care about is myself and can’t think about anyone else I have no sympathy. I used to be nice friendly and caring and WEAK.

[deep_dry_eye]

No one actually wants to help someone with dry eyes. Doctors don’t give a shit about helping us they just want to shove pointless procedures down our throats. I’ve told regular people I have dry eyes and they didn’t even acknowledge how bad it is it’s like telling someone you have a meer cold. If I beat this people are gonna see a different side to me. Dry eyes has turned me into a monster. All I care about is myself and can’t think about anyone else I have no sympathy. I used to be nice friendly and caring and WEAK.

There are definitely many drs that care, you need to find a dry eye specialist.

I think you should stop caring what others think. You should be the best person you are for yourself, not for the others around you.

If i rmb from your posts, there are still many medical treatments that are available and you haven't tried yet.

Your life is your choice, what you choose to do with your life is also your choice. Personally, I aspire to be better, even with a disability like dry eyes, in fact, right now I'm working/chatting w various researchers and drug companies, and I'm trying to work on a new drug study for dry eyes. I'm even spending my own personal money for the benefit of the community.

Dry eye sucks, there's no denial of it, its how you approach it, manage it, and learn to live with it. You can still have a very happy and full filling life.

[SirDryEye]

What you hoping to create a MAGIC DROP THAT CURES DRY EYE....Zzzz heard that before

Anywat It’s not as simple as just try another treatment. I’m only 19 I have no income because I decided to go to uni. It’s not fair us dry eye sufferers are always put bottom of the list because it’s not “LIFE THREATENING” whilst people with cancer drain the system even though they have every right. Bet u have a good salary bet u don’t even think about the cost of eye drops or having to limit your drops. Don’t tell me to be happy when ur not in my situation.

[hopeful_hiker]

Were you able to enjoy parties without alcohol before? Or did you always need it to relax/feel different?

Do you feel that your eyes are too distracting? Painful/gritty/etc.?

[Hokucat]

I live in the US, but @PhoenixEyes has shared the following on where to get sclerals in UK:

"The NHS in UK are familiar with scleral lenses, there are NHS scleral fitting clinics around the country. The most famous / experienced scleral fitter I think is Ken Pullum who is available on the NHS at Moorfields in London. Or you can visit him private at Hertford. Here's a link to his clinic site and a few links to other clinics I've heard of from these forums that can fit sclerals outside the NHS."

http://www.kenpullum.co.uk/ (Hertford)
http://www.peterivins.co.uk/ (Glasgow)
http://www.thecontactlenspractice.co.uk/ (Birmingham)

From what I’ve read from UK forum members, getting adequate treatment for dry eyes through the NHS can be difficult, and getting sclerals covered are especially tough to get prescribed. Like many in the US, people end up paying for sclerals themselves, and it can cost at least a few thousand dollars, but worth it if you can tolerate them, as it can give immediate relief. quattroboy is one UK member from this forum who recently seems to have found a good doctor/consultant through the NHS.

[hopeful_hiker]

I used to be nice friendly and caring and WEAK.

It is a shitty disease. No shame in feeling different. When I felt at my worst I had no capacity to care for others. As you get better, you will see yourself come back to normal again.

As for treatments, definitely do your research about procedures because some doctors are not really sincere, or, perhaps, overconfident.

[farmgirl]

No one actually wants to help someone with dry eyes. Doctors don’t give a shit about helping us they just want to shove pointless procedures down our throats. I’ve told regular people I have dry eyes and they didn’t even acknowledge how bad it is it’s like telling someone you have a meer cold. If I beat this people are gonna see a different side to me. Dry eyes has turned me into a monster. All I care about is myself and can’t think about anyone else I have no sympathy. I used to be nice friendly and caring and WEAK.

I am really sorry SirDryEye that you feel as bad as you do at such a young age.

If you have not watched Dr Korb's video on MGD please do. (I just found the link but it isn't up today, hopefully they have not taken it down)

https://www.youtube.com/watch?v=vSShGZfxiFg&t=7s

Since I have watched this video I have a really much clearer understanding of what this problem really entails. I am constantly learning and they are constantly coming up with new treatments. Sadly, depending on where you live, it IS difficult to find a Dr who really understands what dry eye is and there are many who have no training beyond telling you to use on OTC drop and heat packs. Those Drs are not going to help you what you need are Drs who have the equipment to properly assess and treat you. You really need to get a lipiview type examination to really assess what is going on with your meibomium glands. It may involve traveling to other larger centers but the sooner you find that clinic the better your results will be.

It is a complex disease with no, 'one size fits all' treatment. It is a matter of trying and trying and trying until you find that combination that works for you. There are Drs out there though who DO understand and have taken an interest in dry eye. I started by googling 'dry eye clinic' in my area and over time have been led through various offices until I found my current Dr. He is constantly trying new therapies and getting new pieces of equipment that were unheard of 8 years ago when my problems started. I am now much better than I was even a few months ago having just finished the 3rd of my 4 IPL treatments . Yes I have had to throw some money at it and hopefully your parents can step in and help there.

To help people get an understanding of what I am going through, I like to compare it to getting soap in your eyes except the burning and stinging doesn't go away, at least not for very long. That is a feeling that everybody can relate to.

What you do with your personal life is up to you but a 'let's get plastered today for tomorrow we die' attitude will not be helpful. All things are best in moderation. Above all, stay strong, and don't give up you will improve if you keep trying....cheers....F/G