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  • New Doc, More insight

    As some of you already know, I'm another LASIK dry victim, after having LASIK November 2017 at one of the large high street providers here in the UK.

    It appears I was already starting my dry eye journey before LASIK!

    Currently receiving some good care here in the UK on the NHS. Finished steroids, 3 months into Ikervis and plugs.

    In an attempt to keep pushing to understand my condition better and move to "healed" and "better", I saw a new consultant/doc Mr. Simon Walker at his private practice https://www.thebestsense.com/.

    Mr. Walker has the best attitude and approach I've come across in my journey so far. His best side manner is excellent, talking to me, not at me and he listens! He's also got nothing to do with LASIK, LASEK, PRK etc, in fact, believes it to be a fundamentally bad idea.

    He apologised to me on behalf of his profession for the pain and suffering I've experienced since LASIK.

    So what did I learn?

    - Definitely got mild anterior blepharitis
    - Neurotrophic keratitis left eye not so bad, with only the top right quadrant showing reduced sensitivity. The right eye he could poke all day long with the sharp corner of a tissue, without me reacting! My NHS consultant told me my nerves where fine!
    - Oily tear film.

    Positives:
    - Few dry spots noticed on my eyes.
    - Lids a little loose and baggy but not causing issues.
    - Close my eye properly, so no issues when asleep.
    - Decent observed tear lake.
    - Didn't mention conjunctivochalsis , he lists it on his site as a cause, so I'm assuming it checked for it. He spend more time then anyone oberving my eyes in the slit lamb. https://www.thebestsense.com/good-bye-to-dry-eye

    Tests not done:
    - TBUT already told him my numbers, but he feels it's a very subjective measure, which seems a common theme.
    - Schirmer test, same opinion.

    He was interested in my hormone results from Forth and encouraged me to see my GP for my NHS blood results and pursue the hormone side.

    Finally, I'm down to three plugs, having lost the upper one in my right eye. We agreed not to replace it as this eye was causing a little over tearing.

    So treatment wise:

    - Get on top of blepharitis using Ocusoft scrubs and tea tree facial scrub recommending these in the UK https://www.hollandandbarrett.com/sh...5?skuid=092515 and https://www.hollandandbarrett.com/sh...3?skuid=083623. He also feels controlling Demodex is important! His full regime is here https://www.thebestsense.com/blephar...walker-regimen
    - Investigate the availability of Oxervat in the UK http://www.prnewswire.co.uk/news-rel...637622853.html, to treat the neurotrophic keratitis.
    - Get off the anti depressions as soon as practically possible. He's the only one who understands my eyes are the issue, my mental health is a symptom.

    More interesting opinions:

    - Not a fan of any form of serum drops or AMT. Said he'd recommend the finger prick method if he thought it would help!
    - Reckons I would be wasting my time with confocal microscopy as my problem is with the surface nerves.

    I value all your opinions and thoughts, please comment away.
    Last edited by quattroboy; 20-Sep-2018, 04:00.

  • #2
    Thanks a lot for sharing useful info. Indeed impressive/thorough diagnosis. Lucky you.

    Tear Lake
    How did doctor detect 'decent observed tear lake' since he considers schirmer is subjective (which is my believe too)?
    I assume tear meniscus height? Did dr also do osmolarity, MMP-9?

    Fluorescein Staining
    Did dr do this? if so, did he wait for 1-2 minutes?

    Gland images/function are checked? secretion are clear, no blockage?

    demodex - how did dr detect this?

    Ikervis - do you find it helped you? why dr prescribed you in the 1st place?

    Plug
    You had plugs before because previous doctors considerated you have water issue by Schirmer?

    Thanks again and congratulations.





    Comment


    • #3
      Yes the tear meniscus height, no osmolarity test.

      Yes bright yellow staining, waited a good two minutes.

      No gland images he doesn't have a Lippiview. But I told him the results of my visit to the Dry Eye Centre in Manchester and my partial blinking results. He knows the guy who runs the Dry Eye Centre.

      He didn't detect it, he feels it should be standard practice to treat when blepharitis is present. He reckons he has seen big improvements in his patients when they add it to their routine.

      He was on the fence about Ikervis, not sure it was the answer, could be helping "damp down blepharitis". Reckons I will eventually move off it.

      I've never had a Schirmer, everyone I've seen considers it fairly useless. Simple observing my tear lake in the slit lamp shows how dry I was.

      He reckons the plugs have helped improve the height of my tear lake.

      Just added his opinion confocal microscopy for me, on the above post.

      Comment


      • #4
        Originally posted by quattroboy View Post

        - Not a fan of any form of serum drops or AMT. Said he'd recommend the finger prick method if he thought it would help!
        - Reckons I would be wasting my time with confocal microscopy as my problem is with the surface nerves.

        I value all your opinions and thoughts, please comment away.
        I find this odd, as I know of no other treatment (AMT / serum) for nerve damage. How does he think this will be addressed?

        Comment


        • #5
          Originally posted by Meibum Ian View Post

          I find this odd, as I know of no other treatment (AMT / serum) for nerve damage. How does he think this will be addressed?
          I agree, he thinks Oxervat would be the answer.

          I think what this proves is don't rely on one specialists advice and treatment.

          As humans we all have blind sides and prejudices. This includes doctors. I know as a software engineer, I do.

          Despite his advise I still intend to visit Moorfields for the confocal microscopy, because I believe it will add to the knowledge about my condition, post LASIK.

          I still intend to seek out AMT, because the evidence around growth factors is out there.

          His knowledge of AMT was a little dated, believing, you needed to stitch or glue it into place, and only used for the likes of chemical burns.

          In terms of Serum drops he was thinking AST, and the issues and difficulties, trying to get them supplied in the UK.

          Comment


          • #6
            Thanks again. Seems your new doctor performs tests correctly.
            Only 1-3 of my doctors waited 2 minutes, if they did staining - 80% did not perform it at all.

            Plug
            How long have you had plugs? Doctor would like you to keep or remove them?

            thanks again.
            Last edited by MGD1701; 21-Sep-2018, 01:56.

            Comment


            • #7
              Good approach. More information and diagnostics can only help. Please continue to update, especially if you get the confocal / AMT done.

              Comment


              • #8
                So happy you’re nailing things down...let me say, stitching the membrane in place is from what I’ve read, more comfortable. Insane, I know. But do an advanced search for prokera on the site, there was a guy that did a whole log on it and it helped him A LOT. Like insane improvement. He was clear to say, he’s not sure if it’s the prokera, but what else could it be. Great thread.

                i think getting the confocal done is a great idea....if anything, it will give you a baseline for how effective your treatment is. Or give you the piece of mind that the nerves are fine. Or change your approach all together...you’re on it!

                Comment


                • #9
                  Originally posted by quattroboy View Post

                  I agree, he thinks Oxervat would be the answer.

                  I think what this proves is don't rely on one specialists advice and treatment.

                  As humans we all have blind sides and prejudices. This includes doctors. I know as a software engineer, I do.

                  Despite his advise I still intend to visit Moorfields for the confocal microscopy, because I believe it will add to the knowledge about my condition, post LASIK.

                  I still intend to seek out AMT, because the evidence around growth factors is out there.

                  His knowledge of AMT was a little dated, believing, you needed to stitch or glue it into place, and only used for the likes of chemical burns.

                  In terms of Serum drops he was thinking AST, and the issues and difficulties, trying to get them supplied in the UK.
                  What do you mean by AST?

                  Comment


                  • #10
                    Originally posted by jack1988 View Post

                    What do you mean by AST?
                    Autologous Serum Tears

                    Comment

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