Venting

[Guest]

Litterally dont know how to cope as i thought I would be able to get some relief by means of management. Feel like im stuck always chasing wanting relief and lack of many treatments in the uk. More so, how is anyone to cope with a disease every single day for the rest of their lives? I'm struggling to get relief if im honest. I'm tired and exhausted, but im not the only one there is lots of people out there. I just im sick of this chronic disease. I dont know how I'm going to cope in future years as no relief is annoying me... just annoyed at how little research is for the disease. I've managed the disease at best as I can but still not that far away, and not sure how to get to it?

just wishing research would pick up and one day be free of the chains from dry eyes..... its depressing and effects your life... im just so fed up and angry, having to mainrain what seems a simple disease to others. Jusr unsure despite anger and depression, how to keep happy and keep going with this disease? I'm going to start a new job, but I had hoped for relief before it. Mgd seems so hard to keep under control!

[Guest]

I just want to say, I’m sorry you’re feeling so frustrated. I completely understand how you feel. For almost a year my eyes were out of control painful. Let me be clear, I’m still not happy with my eyes/disease. I have however found a way to manage the problem better. I think your biggest issue is being in the UK. I feel so bad for the UK dry eyers. Limited resources and little help from the NHS. If you have the ability to pursue a private doctor in the UK or Europe, follow through with that. If you can get to the US, even better. It took me 8 doctors and I’m still having a problem with the right eye that I believe can be solved. I guess for me, I need to see a few more doctors and see what they can offer me.

Good luck!

[Guest]

I know how you feel too - for about 18 months I was in so much pain and thought it would never end. I go to Peter Ivins in Glasgow and they fitted me with Scleral Lenses (after trying all the usual - preservative free drops, hot compresses, fish oils) eventually which worked - I now have a bit of pain some of the time rather than lots of pain all of the time, I have corneal neuralgia rather than MGD but maybe they could help you too?