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I'm 8 months in to the severe dry eye experience and was set to try ciclosporin (also spelled cyclosporine/cyclosporin) aka the nearest thing the UK has to Restasis. I understand that up until very recently this drug was available on "special" prescription, from one place on in the UK only, Moorfields Eye hospital. However, it seems that Moorfields facilities department, where the hard to find "special" eye prescriptions are produced, is being shut down.
http://www.pharmaceutical-journal.co...067721.article
Rather concerningly, the above article says there were"concerns raised by the UK Medicines and Healthcare products Regulatory Agency (MHRA) about some of its practices and processes".
The article also said "The company will continue its range of licensed medicines as well as its range of outsourced ophthalmic specials, which are not available from other suppliers." - and I found another PDF document suggesting that while the 0.02% ciclosporin would no longer be produced, the 2% version would be.
However, I called Moorfields hospital directly and they said that no version of ciclosporin would be produced any longer as their facilities department was being shut down altogether. They confirmed they are or were the only place in the UK to supply ciclopsorin and therefore this drug is not something UK dry eye sufferers will be able to get hold of any longer.
So I just wanted to update any interested forum users who might also be chasing ciclosporin with this info.
But I also wondered if any forum user had heard of any other place in the UK who do ciclosporin or way to get hold of it?
I understand that Restasis is a similar product and while not available as standard in the UK can also be ordered on "special"-but that the problem with this is that it's extremely expensive. Boots charge £190 for one month's supply. Do any forum users know of a reputable online pharmacy where this drug can be bought more cheaply? I know there are some dodgy ones out there..but on the other hand £190 ppm is a bridge too far for almost anyone!
http://www.pharmaceutical-journal.co...067721.article
Rather concerningly, the above article says there were"concerns raised by the UK Medicines and Healthcare products Regulatory Agency (MHRA) about some of its practices and processes".
The article also said "The company will continue its range of licensed medicines as well as its range of outsourced ophthalmic specials, which are not available from other suppliers." - and I found another PDF document suggesting that while the 0.02% ciclosporin would no longer be produced, the 2% version would be.
However, I called Moorfields hospital directly and they said that no version of ciclosporin would be produced any longer as their facilities department was being shut down altogether. They confirmed they are or were the only place in the UK to supply ciclopsorin and therefore this drug is not something UK dry eye sufferers will be able to get hold of any longer.
So I just wanted to update any interested forum users who might also be chasing ciclosporin with this info.
But I also wondered if any forum user had heard of any other place in the UK who do ciclosporin or way to get hold of it?
I understand that Restasis is a similar product and while not available as standard in the UK can also be ordered on "special"-but that the problem with this is that it's extremely expensive. Boots charge £190 for one month's supply. Do any forum users know of a reputable online pharmacy where this drug can be bought more cheaply? I know there are some dodgy ones out there..but on the other hand £190 ppm is a bridge too far for almost anyone!
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