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  • #31
    I'll wait for the topic here.

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    • #32
      It would be great if you guys could post up side effects or the action of this drug, especially inflammatory mediators, tissue and cell changes from confocal microscopy or biopsy, and what's happening in the blood and veins. It's particularly interesting how this affects the fibrous tissue rather than just control inflammation. Does it look like it's removing tissue? I'm not medical, but I'm guessing before and after retinal photographs may turn out to be useful, possibly OCT that includes veins. And eye pressures.
      Last edited by littlemermaid; 05-May-2015, 03:37.
      Paediatric ocular rosacea ~ primum non nocere

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      • #33
        Originally posted by littlemermaid View Post
        It would be great if you guys could post up side effects or results you get, especially inflammatory mediators, tissue and cell changes from confocal microscopy or biopsy, and what's happening in the blood and veins. It's particularly interesting how this affects the fibrous tissue rather than just control inflammation. Does it look like it's removing tissue? I'm not medical, but I'm guessing before and after retinal photographs may turn out to be useful, possibly OCT that includes veins.
        Hi little mermaid,

        I'm going to visit my eye consultant on the 11th of May, I'll ask him if he sees any changes to comment on from my last inspection. I'll report back here.

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        • #34
          Does he do anything more than slit-lamp exam and eye pressure check?
          Paediatric ocular rosacea ~ primum non nocere

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          • #35
            Originally posted by littlemermaid View Post
            Does he do anything more than slit-lamp exam and eye pressure check?
            Hi,

            I have a slit lamp inspection, he checks my intraocular pressure and a dilated eye exam so he can check the back and the inside of my eyes. He also checks my pupils response to light. Last time I had a blood test but I don't feel he'll do that again unless I ask because it comes back clear.

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            • #36
              Last time I had a blood test
              It would have to be the blood and veins in your eyes. And retinal photographs and OCT before and after using the drug. The MedInsight questionnaire just asks about eye appearance in the mirror and requests photographs.
              Paediatric ocular rosacea ~ primum non nocere

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              • #37
                Hi,

                I've just had my eye examination, info is here:

                http://dipyridamole.forumotion.com/t...ole-discussion

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                • #38
                  just wanted to let everyone know i had a terrible experience with the dipyridamole drops and i have already communicated it to Shira at MedInsight. I was in the process of improving with my corneal neuralgia in January of this year. I used the dipyridamole drops from buyldn.com for the month of February and it set me back taking my pain from a 6 to a 9 or 10. It is now 3 months later and i still have not gotten back to where i was in January and still have pain of 9 or 10 in my eyes. My MD thinks the drops set off my corneal nerves. I highly regret using the drops and i am out $120 as well which only adds insult to injury (literally) I wish i had never seen the thread on dryeyezone so i am glad you are moderating it now. With all respect to ClaireW I highly regret using these drops and would caution anyone who wants to try them to do your homework first. I did my homework and even had the blessing of my eye MD and still wound up hurting myself unfortunately.

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                  • #39
                    Originally posted by Fitch View Post
                    just wanted to let everyone know i had a terrible experience with the dipyridamole drops and i have already communicated it to Shira at MedInsight. I was in the process of improving with my corneal neuralgia in January of this year. I used the dipyridamole drops from buyldn.com for the month of February and it set me back taking my pain from a 6 to a 9 or 10. It is now 3 months later and i still have not gotten back to where i was in January and still have pain of 9 or 10 in my eyes. My MD thinks the drops set off my corneal nerves. I highly regret using the drops and i am out $120 as well which only adds insult to injury (literally) I wish i had never seen the thread on dryeyezone so i am glad you are moderating it now. With all respect to ClaireW I highly regret using these drops and would caution anyone who wants to try them to do your homework first. I did my homework and even had the blessing of my eye MD and still wound up hurting myself unfortunately.
                    Hi Fitch,

                    I'm so sorry to hear that! How awful! I wish you all the best with your recovery.

                    I will direct other people on the forum to read your experience. The last thing I want to be seen as is a one woman band promoting these drops. I think it's so important to hear from other people who have had the opposite to a positive experience like I have - think this highlights why we need to exercise caution.

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                    • #40
                      thanks ClaireW. I wish you all the best in your recovery as well.

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                      • #41
                        Hi, Just curious of results of people who have being using the eye drops for a while.
                        Ive just ordered mine and am awaiting delivery.
                        They are pretty expensive so hopeful they are worth it.

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                        • #42
                          Hello... I would like to know if there are any updates about this... Thanks!

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