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Does anyone here have conjunctival chalasis (CCH)?
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Did you get the corrective cch surgery?Yes I would recommend Dr Tseng for cch corrective surgery. He pioneered the surgery and is an expert at it. Sorry your original surgery wasn't successful.
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Guest repliedOriginally posted by TARYN View PostHi Alix You can go back to work immediately. I felt great right away. I had some redness from the surgery. That disappears slowly over a 3-4 week period . It disappears with time and with the help of steroid eyedrops. Also I flew in to Miami for the surgery, so I was fine flying home which was a 2 hour flight. And yes, Dr Tseng will prescribe the use of his preservative free steroid drops to see if it helps the problem so you can avoid surgery. I had the AMT surgery yeas ago for CCH and more recently for a pinguecula . For both problems I had great results.
With the CCH, I had redness and burning and with the pinguecula, I had tearing. For both problems, he excised the conjunctival tissue and then covered the area with amniotic membrane. For both it gave me a smooth ocular surface and stopped the burning, redness....and in the case of the pinguecula, it stopped the tearing
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Originally posted by Topher3 View PostAlix I do believe addressing CCH could definitely possibly reduce the symptoms such as burning and tearing and possibly even some dryness/foreign body sensation. However when it comes to redness a lot of the time redness is caused by irritation to the eye and with low amount of meibomian glands it may be hard to reduce redness permanently. Not saying that it’s not possible but I don’t want you to be down if that is a symptom that is not fixed from the surgery. A great thing in the mean time there is a drop called lumify which works DIFFERENTLY to normal redness relievers and does not cause a rebound redness effect have a look up on it. It works wonders for people! I need to get myself a bottle as my eyes look absolutely horrible.
As for Lumify I have tried in the past to get hold of it but unfortunately it’s not available in the UK and the online stores/pharmacies which sell it don’t ship to here either.
Let us know if it works or not I’d be interested to find out. I might be going to the States next year so could pick some up then.
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Alix I do believe addressing CCH could definitely possibly reduce the symptoms such as burning and tearing and possibly even some dryness/foreign body sensation. However when it comes to redness a lot of the time redness is caused by irritation to the eye and with low amount of meibomian glands it may be hard to reduce redness permanently. Not saying that it’s not possible but I don’t want you to be down if that is a symptom that is not fixed from the surgery. A great thing in the mean time there is a drop called lumify which works DIFFERENTLY to normal redness relievers and does not cause a rebound redness effect have a look up on it. It works wonders for people! I need to get myself a bottle as my eyes look absolutely horrible.
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Originally posted by TARYN View PostHi Alix. Make sure that after they excise the conjunctival folds that they cover the area with amniotic membrane. I think that is key to a successful outcome of having a smooth surface with no scarring and a quicker healing period.
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Hi Alix. Make sure that after they excise the conjunctival folds that they cover the area with amniotic membrane. I think that is key to a successful outcome of having a smooth surface with no scarring and a quicker healing period.
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Originally posted by Dowork123 View Post
I understand, but if you treat the problems you know exist, you can start narrowing down the actual causes of the pain. This is the beginning of your road to recovery in my opinion. I think the cch is a huge issue. I’ve read throughout this process that even minor cch can cause huge burning. You may fix the cch and feel perfect regardless of the other issues. Only one way to find out sadly.
In the meantime I'll carry on taking the Ikervis, do a trial test of the scleral lens, and try and forget about it all until my next appointment at the hospital in January.
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Originally posted by TARYN View PostHi Alix You can go back to work immediately. I felt great right away. I had some redness from the surgery. That disappears slowly over a 3-4 week period . It disappears with time and with the help of steroid eyedrops. Also I flew in to Miami for the surgery, so I was fine flying home which was a 2 hour flight. And yes, Dr Tseng will prescribe the use of his preservative free steroid drops to see if it helps the problem so you can avoid surgery. I had the AMT surgery yeas ago for CCH and more recently for a pinguecula . For both problems I had great results.
With the CCH, I had redness and burning and with the pinguecula, I had tearing. For both problems, he excised the conjunctival tissue and then covered the area with amniotic membrane. For both it gave me a smooth ocular surface and stopped the burning, redness....and in the case of the pinguecula, it stopped the tearing
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Before I see him, his assistant does the full range of tests...dyes, TBUT, etc,. Plus he has a very powerful camera so you can see your eye in a very large format and see every detail of the surface of the eye. I could not see the conjunctival folds in real life but he took a video so you could see the folds moving. I could see the pinguecula in real life when I looked into a magnified mirror. It looked like clear bumps.
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Hi Taryn
How did your doctor detect CCH and pinguecula? with dyes, if so, which one, just curious.
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I forgot to say, when I first started experiencing tearing, I thought i had a blocked tear duct. I went to an oculoplastic doctor and he tested to see if my tear ducts were blocked. The tear ducts were open so I then thought it might be the pinguecula. Since the tearing has stopped after the surgery, it was probably the pinguecula.
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Hi Alix You can go back to work immediately. I felt great right away. I had some redness from the surgery. That disappears slowly over a 3-4 week period . It disappears with time and with the help of steroid eyedrops. Also I flew in to Miami for the surgery, so I was fine flying home which was a 2 hour flight. And yes, Dr Tseng will prescribe the use of his preservative free steroid drops to see if it helps the problem so you can avoid surgery. I had the AMT surgery yeas ago for CCH and more recently for a pinguecula . For both problems I had great results.
With the CCH, I had redness and burning and with the pinguecula, I had tearing. For both problems, he excised the conjunctival tissue and then covered the area with amniotic membrane. For both it gave me a smooth ocular surface and stopped the burning, redness....and in the case of the pinguecula, it stopped the tearing
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Guest repliedOriginally posted by Alix View Post
Possibly yes. The problem is there is an issue with every part of my eye so they are all contributing to the burning pain and redness I am suffering from....
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Possibly yes. The problem is there is an issue with every part of my eye so they are all contributing to the burning pain and redness I am suffering from....
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Originally posted by TARYN View PostMy CCH was mild also. I tried drops and compresses but nothing helped except the excision of the conjunctival folds and the placement of the amniotic membrane over the area that was operated on. You are right about it causing an unstable tear film which produced the symptoms of inflammation, redness and burning. My tears were not fully covering and lubricating the ocular surface. It was an easy recovery and I felt relief from my symptoms immediately. I would assume it would have gotten worse if I did not take care of it, but I don't know how fast or slow it would have progressed.
When you had surgery how long did it take and were you able to go back into work the next day?
Also did the doctors mention anything about how to rid of the folds naturally or with an eye drop or is surgery really the only solution?
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