Dealing with family

[tiff]

Wish I had advice. My family is the same way and it's very upsetting. Instead of being supportive they tell me to just use the computer less or get more sleep. I think people have no idea how awful it is to have your eyes hurt and be sensitive almost all the time. I remind my family that there are certain times I cannot be relied upon to go outside or even drive. After about 7 years of this they haven't caught on that it's a serious illness. Unfortunately their trivializing of it or forgetfulness of it means I just don't vent to them about it and have to deal with it on my own. Sorry you're also going through this.

[justbob]

My family have great difficulty understanding my position, they think I'm obsessing over my eyes and other people don't do that (insert mental health reason here), that they just get on with their lives with whatever disability they have rather than keep looking for help (probably after listening to first 1-2 doctors). Any comments from people on what their personal philosophy in this respect is or how their family act/think about your problem most welcome to convince mine I'm not crazy, thanks!