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Some Thoughts on Anxiety With DES

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  • Some Thoughts on Anxiety With DES

    When I was losing my hearing, I experienced much the same distress that I did when my dry eye problems were at their worst. It occurred to me that the underlying reasons might be the same.

    With my hearing loss I had no pain at all except for the 3 surgeries I had done. On the other hand, the anxiety was almost unbearable at times. When one of our basic senses such as hearing or sight becomes at risk we are dealing with one of the most primal components of our biological survival mechanisms. Fight or flight are normal responses and when one's senses required to carry out either of those responses is impaired it can increase anxieties, even subconsciously.

    On top of that, we cannot forget that the impaired sense is struggling to survive because there are constant reminders and our biology is such that it wants us to attend to that impaired sense if possible. While losing my hearing I was very distressed by constant and severe tinnitus (sound in my ears cause by brain and ears trying to communicate and they cannot), dizziness, and inabiity to make sense of what people were saying. It was additionally, very fatiguing.

    When I compare the 2 situations and the fears surrounding both about where it would all end and whether I would ever have relief, I can see that they were connected because they both involved basic survival senses and also the grief that accompanies loss.

    I thought by posting this, I might be able to help someone who does not understand why DES is so distressing (maybe a spouse or parent or friend).
    I believe this is all connected to our self-preservation and that our responses to this are normal.

    Some things that provided relief to me were counseling, relaxation, doing things I found pleasurable, friends who understand and will listen, plenty of rest, exercise greatly relieves stress for me, music, hot baths, and even comfort food. Praying also was helpful and I am currently learning about meditation. It also helped that I found good and very understanding doctors.

    My heart goes out to those who have suffered so long and so severely with this issue. Before I had dry eye, I had no idea what people were talking about and that it could be distressing. Even at that, by reading here, I am clear that my situation is not nearly as bad as some. I keep all of you in my prayers and I pray researchers will come up with a cure.

  • #2
    Wow, thanks for the insight.

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    • #3
      Yeah, I need to do some more testing on this but depression causes stress and vise versa.

      Like you said exercise is great, so is breathing but even that doesn't seem to have a lasting effect. Sleep is also huge. Anyone with depression notice that? Right when you wake up you can feel the seratonin/melatonin (not sure which)?

      Not sure I agree with you about comfort food though. =p
      Which is it? Is it what you know or who you know? Or is it how well you convey what you know to who you know it to?

      -Tim

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      • #4
        Rubyslippers, thanks for a great post. There is great information in there. Insightful, as lindalou says. Your coping skills are really what get you (us) through this. They might be a little different for each person, but exercise, good sleep, and a support system if it's available.

        Going out and getting drunk (hee hee) might feel good at the moment, but knowing what you'll have the next day probably makes it not worth it. It might for someone, though, and if so, that's their way of coping.

        Your post also tells us that DES is not the only thing that can go wrong. For some people, this is the first thing to ever go "wrong" with their health. You had to cope with hearing loss and DES so far. Since my onset of DES, I've had Sjogrens and cancer to deal with--all within a 6 month period. It's doable.

        Life is coping with every day happenings. We all have to take it day by day, no matter how easy going or tough it may be. We'll all get better to some degree, even if it's just learning how to cope with this nasty stuff. Lucy
        Don't trust any refractive surgeon with YOUR eyes.

        The Dry Eye Queen

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        • #5
          MGD, I put on 10 pounds this winter and I just let myself eat because it soothed me. I knew all the while I would have to get it off. I have gotten 8 pounds off this summer since I got the Synergeyes which have provided great relief. I still need to work on the other 2 and about 6 or 7 I already had to lose. Time is running out, LOL, because by late Sept. my body wants to start fattening up for winter. The never ending cycle!

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          • #6
            I am certainly interested about your success with Synergyes! It is something I have not tried and I'm going to go back through your posts. You seem very satisfied with your result! I'd go for the weight loss too. Lucy
            Don't trust any refractive surgeon with YOUR eyes.

            The Dry Eye Queen

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            • #7
              The other things I did helped a little. Plugs helped more. The Synergeyes though have been even more of a miracle than I expected. I am back outdoors in sun and wind, jogging again, and living life quite comfortably. I need a drop or two now and then but actually can go 2-3 days without needing a drop or even considering it. The difference is beyond fabulous.

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