Hi everyone,
I'm new to the forum but finding a lot of useful conversations around. My main concern as of now is that after a corneal ulcer in my right eye, the dryness has gotten unbearable! I have to lubricate it every 15 minutes or so, and most of the day it looks red (sometime blood...
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SJS mouth and skin drawbacks.
I've had SJS on 2006, and I was always concerned about fixing my eye problems because they are the biggest.
But I was planning to go to the US to look for the options I have there, and I really would like to find a solution for the skin colors left because of the bullae, as well as my lips....
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List of users with SJS
Hi
i'm thinking maybe it'd be useful to have a list of users with sjs in this forum, basically to see the treatments, we are just a few so...Last edited by maxif875; 04-Feb-2010, 16:17.
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Top tips for SJS
Hi there.
I introduce myself, i'm a guy from Uruguay living in Spain and at the first year of birth i had an Stevens Johnson.
I've recently discovered this web (first time i google for SJS) and i'm so glad to have come across this site because otherwise i wouldn't have known about some...Last edited by maxif875; 04-Feb-2010, 09:17.
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New forum
I think we probably have very few members with SJS but I get phone calls every couple of weeks from people with this condition so I know there are people out there...
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