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  • My Semi-Detailed Story

    I didn't want to start another thread, but thought this was important.
    From 1997 until present time and probably beyond ~ off and on I've had nothing but eye trouble and it started with a Dr. taking pictures of my eyes 2-27-97 (never will forget that date ) and I had not a clue as to what was going on (the door had laser written on it). So when I called the office the next day the Dr. laughed at me when I told her whatever she had done with the laser bright lights had ruined my eyes. They didn't tell me that they took pictures until I kept calling and calling because my eyes hurt and they were well ~ like looking through a transparent static T.V. channel that had gone off because of a storm or something. That part has stayed with me all these years (transparent static screen that I look through). It also triggered gray-outs. It took me going to tons of specialist's all over the place for nearly a year ~ Nashville (I saw the meanest/roughest Dr. at Vanderbilt), Knoxville, Atlanta, NY, after exhausting all my options here in Chattanooga. Finally I found a wonderful neurologist who sent me to another specialist optho-neurologist who in turn gave me meds to stop the gray-outs (just hope it works this time around). Other diagnosis is retinal migraine, photophobia and loss of contrast. Six years later I was diagnosed with severe dry eye syndrome. Went to numerous Dr.'s for this too before I was diagnosed with dry eye (because I kept having recurring pink-eye). The SmartPlugs were put in and I wish I could turn back time and not have those things put in; as they both ended up getting infected at different times (one last year and the other just a few weeks ago).

    This is what I sat down and wrote out for the new Dr. tomorrow:

    About 4 weeks ago my left SmartPlug got infected ~ Dr. Squeezed it out along with an eyelash.

    Then about a week later I had an allergic reaction to lotion or something I wasn’t sure what ~ my eyes were so red and irritated.
    Went to Dr. put me on Mild Pred drops for a week.
    Kept using my Refresh Tears (I used those for 5 years) and my eyes were still really red and went back to Dr. and I was told I have an allergy to the Refresh Tears and to use non-preservative drops.
    So I bought Refresh Tears non-preservatives in the little vials. Those non-preservatives did okay for a about a week and then my right eye around the Iris (?) (brown circle) started burning like fire/like it was being cut and it only happened at night mostly and after that I only used those for 2 more days
    then had to go back to the Dr. (that was last Thursday) because my right eye in the mornings (for two mornings) had like a black shadow that would come across the front of it. So I used Sulfacetamide Sodium & Pedinisolone Sodium & phosphate ophl 10%- by Bausch & Lomb the first two mornings this happened. My right eye just kept hurting in the front really bad.
    Dr. wanted to dilate my eyes, only the right one was dilated. Said optic nerve & macula ~ looked really good) and was told to stay off all eye drops and use cold compresses. Only thing is the dilated eye solution was only supposed to last an hour and it lasted 8 hours. My eye has never been the same. My gray-outs came back (seen an optho-neurologist for that back in 1998 when the same thing happened (unfortunately I didn’t remember until the gray-outs came back) and he put me on a vasoconstrictor which stopped the gray-outs). Not only are my gray-puts back, but also my eye has double vision now and everything looks really white (maybe fuzzy and it looks white). My floater in my right now doesn't come and go like it used to ~ it now stays (still floats), but has a string looking addition onto it.
    Friday, Saturday I kept putting cold compresses, Sunday woke with eyes extremely red and goopy (lots of goop).
    Monday A.M. called doctor to see about what to do & left message with the nurse who said it’s probably pink eye and I told her my chemicals I’m allergic to (neomycin and propylene glycol) and she said okay… but I never got a call back ~ by this time my eyes were itching out of their sockets and I bought over the counter pink eye drops(Similasan's ).
    Tuesday she called in RX, but I was allergic so I couldn’t get it.
    Only used OTC pink eye drops until Tuesday evening because my right eye started hurting worse and has gotten fuzzier/blurry. The front of my right eye is still extremely painful.

    So this is where I am now.

    Thank you so much Melissa, Liz, Teri and Dave for all your suggestions and help

    I will update after tomorrow's appointment. Just pray I don't lose my eyesight in my right eye (I'm really scared). I've just had so so many horrible Dr. appointments, but then I understand you have to keep searching until you find the one that can finally help.

    I am truly happy I found this site. I wish everyone in here the very best of luck in searching for relief. Mine is not near as bad as lots in here and my heart just breaks that people have to suffer so much.
    Last edited by Missie; 03-Jun-2009, 17:50. Reason: didn't spell check

  • #2
    Missie,

    I will say a prayer for you. I know how scary this is. After my eye surgery, I truly thought I was going blind as well. Once you have a solid diagnosis and plan, things seem a little easier to tackle. Please let us know how things go for you. I will pray that you find answers and comfort.

    Prayers,
    Melissa
    pianolady

    Comment


    • #3
      Originally posted by msienkiewicz View Post
      Missie,

      I will say a prayer for you. I know how scary this is. After my eye surgery, I truly thought I was going blind as well. Once you have a solid diagnosis and plan, things seem a little easier to tackle. Please let us know how things go for you. I will pray that you find answers and comfort.

      Prayers,
      Melissa

      Thank you so much Melissa for you prayers and your help.

      Comment


      • #4
        Today's Results

        Originally posted by msienkiewicz View Post
        Missie,

        I will say a prayer for you. I know how scary this is. After my eye surgery, I truly thought I was going blind as well. Once you have a solid diagnosis and plan, things seem a little easier to tackle. Please let us know how things go for you. I will pray that you find answers and comfort.

        Prayers,
        Melissa
        Melissa, I'm sorry you had to go through such a tough time after surgery. That had to be horrifying. I'm looking forward to the easy part (smile)

        This is how today's visit went:
        They tested my dry eye and you're not going to believe this ~ well you probably will because prayers do work and miracles happen. I actually have severe allergies ~ there are blisters under my eye lids.

        My right eye that hurt so bad and so sore... they put a contact on it (and by the way it's going to be permanent because I am not the contact kind of person LOL I will never be able to get it off) But I have to leave the contact on and it's purpose is a bandaid and you wouldn't believe how much better my eye feels. I have dry eye, but it's not severe like the other docs told me, it's the allergies that is severe. Maybe the blisters are from the OTC eye drops I don't know. But also I'm scared of this contact, but I have never had contacts and I'm suposed to leave this on for 4 weeks and then I go back for a follow-up.

        I hope this helps someone else in here that might be having problems with eye pain and it's allergies. I would have never ever thought allergies causes this much pain. I'm hoping the double vision goes away and the black shadows will be gone forever. Right now the contact is making my eye really blurry. I will keep you updated on what is going on and if this is the answer or not, but for now this contact thing has really helped my horrible eye pain.

        I don't have a job, no insurance; so I'm not going to be able to go to my allergist to see what else I'm allergic to. But I just pray this is the answer. I'm scared to go to sleep tonight with this contact in

        Thank you again for all your help and prayers

        Comment


        • #5
          Hi Missie, how is it going with the contact?What is it exactly?Why do you have to wear it for two weeks straight?
          I'm happy you feel better anyways!

          Comment


          • #6
            Originally posted by lui View Post
            Hi Missie, how is it going with the contact?What is it exactly?Why do you have to wear it for two weeks straight?
            I'm happy you feel better anyways!
            Hey Lui,
            Just my luck, I had to be at the eye doctor this morning as soon as they opened. They had to take it out, the lower white part (close to the corner of my eye) kept pinching and I went back yesterday hours later after they put it in and told them about it, but since I haven't had contacts ever they thought I just probably had to get used to it. My Iris felt so much better with the contact, but the lower white part of it was pinching I couldn't stand it. Whatever the pinching sensation was ~ well the white part of the eye toward the corner hurts now, but it feels like there is something in it ~ I'm thinking maybe it got scratched or something ~ it's almost funny ~ I mean I'm so tired of crying so what else can you do... Anyway I have to use an antibiotic in that eye for a few days instead of my allergy drops.

            But the way the contact was supposed to work was like a band-aid because the allergy bumps/blisters under my eyelids was scraping and making my Iris irritated and very sore. I was suppose to wear it for four weeks while using allergy drops.

            Things never work out for me like they are supposed to ~ story of my life

            Comment


            • #7
              Well I did something really really dumb this morning. After I got home from the eye doc they had given me something called TobraDex (which is a steroid and I didn't know) they just told me it is an antibiotic.
              Well they told me after they took out the contact ~ that I need to put 6 drops in ~ within 30 minutes. They said one drop every five minutes. So I put in all the drops like instructed and as sensitive as my eyes are and without really asking about the eye drop, which I'm mad at myself for. Now my gray-outs are worse and my veins in my eyes are major swollen. I know steroids are not good for my eyes. I thought I had something in my eye, went to the mirror and it was my veins that were extremely swollen.

              I pray if I ever get out of this mess I will stay clear of putting drops in my eyes except for moisture that is.
              Last edited by Missie; 05-Jun-2009, 20:42.

              Comment


              • #8
                Missie,

                Please be careful with tobradex; it has bak in it. I had a terrible time with it. Now, I realize that I can't tolerate the bak. 6 drops in 30 minutes seems like a lot, especially with the bak.

                I will keep praying,
                Melissa
                pianolady

                Comment


                • #9
                  Originally posted by msienkiewicz View Post
                  Missie,

                  Please be careful with tobradex; it has bak in it. I had a terrible time with it. Now, I realize that I can't tolerate the bak. 6 drops in 30 minutes seems like a lot, especially with the bak.

                  I will keep praying,
                  Melissa
                  Now I'm more scared than I was....

                  It's a very tiny little bottle they gave me and I should have done research on it before using it.

                  It did seem like a lot and I should learn not to totally trust eye docs especially with all I have been through with them. That's another reason I'm so so made at myself.

                  Comment

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