Corneal scarring

[ringo]

Its great they are giving you Zovirax while on the Predforte, as the steroid suppresses eye immunity. Your situation is a bit complicated, you have an autoimmune problem, which obviously needs to be treated with immunosuppressants, while at the same time you need your immune system at full capacity to fight off the virus.
I mentioned the neurological inflammation your doctor mentioned; in my opinion your eyes may be greatly relieved by pilocarpine; at least they will be better lubricated.
I really wish I knew anything more regarding your situation, but my knowledge when it comes to eyes is very limited to certain aspects of dry eye only.
Please let us know what the other specialists (rheum, endocr.) have to say about your condition.Let me know what doctor thinks about pilocarpine option.
You are in my prayers....
Dani

[03CobraDryEye]

Its great they are giving you Zovirax while on the Predforte, as the steroid suppresses eye immunity. Your situation is a bit complicated, you have an autoimmune problem, which obviously needs to be treated with immunosuppressants, while at the same time you need your immune system at full capacity to fight off the virus.
I mentioned the neurological inflammation your doctor mentioned; in my opinion your eyes may be greatly relieved by pilocarpine; at least they will be better lubricated.
I really wish I knew anything more regarding your situation, but my knowledge when it comes to eyes is very limited to certain aspects of dry eye only.
Please let us know what the other specialists (rheum, endocr.) have to say about your condition.Let me know what doctor thinks about pilocarpine option.
You are in my prayers....
Dani

You've provided a wealth of information. Unfortunately it is not a common reaction. I was on an immunosuppresants for 7 weeks, after my eyes were blood shot red with inflammation for 3 months. It looked like at the time like someone painted both eyes with red paint. That aside, the drs tell me that immunosuppresants won't turn off the attack mode my immune system is in. Well at least its gotten better. Hopefully this is limited to a few people in the world. Just real bad luck. We'll see how it all heals up. I can't control the outcome so I'll just have to do the best that i can witht eh outcome. Thanks for the prayers. I'll keep everyone updated.