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Fantastic news for dry eye patients in Norway

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  • Toril
    replied
    Hmm...no, unfortunately the site is only in Norwegian. Maybe you could send them a mail, asking if they are planning to get an English version of the site as well? Or you could post on their Facebook asking the question.

    I don't know that much about Lipiflow treatment and unfortunately I'm not able to get that kind of treatment here, but would be interesting to hear about your experiences anyway (and I'm sure many other memembers think the same).

    Toril

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  • rppnj
    replied
    Originally posted by Toril View Post
    I'm a Norwegian dry eye patient that has struggeled with getting the right treatment for years (had to go all the way to Paris and Prof. Baudouin to get the help I needed).

    Today I found out that three eyedoctors have opened a private clinic for dry eye patients in Oslo. I don't know anything about them yet apart from reading on their webpage (www.torreoyneklinikken.no), but it looks very promising.They offer all up to date treatments, Restasis included.

    A few years ago I was laughed at at the eyedoctor's office when I told I wanted to try cyclosporine treatment for my dry eyes. Things are changing!!!

    Toril :-)
    Hi Toril,

    I'm from the state of New Jersey in the USA. Is there any way of viewing this web site ( www.torreoyneklinikken.no
    ) in English? The site appears to have a lot of excellent information that I would like to have access to.

    By the way, I am undergoing the Lipiflow treatment on April 4. If you and others on this thread are interested in Lipiflow, let me know and I will be happy to post my results and progress. Kindest regards, rppnj

    Leave a comment:


  • zooro1x
    replied
    sure hope so my eyes are getting bad

    Leave a comment:


  • Kenneth
    replied
    Hi - I`m soon going there ( from denmark ) 1 consultation cost`s about 1000,- Norwegian kroner - about 200 USD

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  • Cristi
    replied
    Hi
    So I went to Norway at the dry eye clinic in Oslo. Overall a good impression the results partially correlate with my symptoms the doctors were nice. They don't have the meibography device and do not plan to introduce it very soon as I understood because of its high price (doctor said about 500.000 NOK which is about 70.000 EUR from what I've noticed that's about an yearly medium salary.... however it doesn't sound too much for their standards of living and considering the increasing number of dry eye patients due to refractive surgery....).
    I was tested for an unbelievable 3.5 hours!!!!! they do a lot of testing but I'm afraid that some of my results weren't that accurate because they tested one after another and one test might influence the results of the following one: for example I obtained almost normal results at the osmolarity test but I think it was due to the fact that they performed it after they measured my pressure with an air blowing device that determined some reflex tears
    They expressed only my lower eyelids and doctor said I have MGD in the left eye but not in the right one.... I'm sure I have it in both eyes because even if my left is much worse my right isn't normal either (it is very sensitive even if it's lower plugged and I get some white debris like salt at the top of the eyelashes which I know it is a sign of MGD....for sure the MGD is worse in my left the results at the TBUT correlates with the symptoms 7 sec on the left and 15 on the right).
    They also measured the corneal sensitivity I was normal in the right one 6 cm but in the left eye the cornea was a little bit desensitized a scored only 5 cm.
    The part with the confocal microscopy was the hardest one as I had to stay with an eye sticked to a device to which doctor applied some gel for an eternity .... it was quit difficult not painful but unconfortable.... The results showed some nerves regenerated after lasik but doctor couldn't tell me if there was some abnormal regeneration in the stroma and I was shocked to see that my worse eye had a lot of scars at the molecular level doctor said there were signs of infection???? Indeed after lasik I had 2 episodes of infection in the worse eye proved by the lab test after they took a sample from my eye with a cotton swab but I didn't have any symptoms???? Have any of you experienced something similar to this after surgery??? The pictures from the confocal microscopy were compared to some normal ones from a book actually the doctor showed me both on the pC and in the book....
    As a conclusion it was definitely a good experience at least I have now some results other that the schirmer test...as a treatment they said to use the same old warm compresses which I cannot tolerate very well ( they make my eyes drier) and doxicycline for 3 months (I don't know if I'm gonna take them as I know they have a lot of adverse results).
    Please feel free to ask me if you have questions.
    Best regards to all of you

    Leave a comment:


  • PiotrSWE
    replied
    Originally posted by sunshinelover View Post
    Hi! I can also recommend the clinic, went there in october. I also agree with your experience on docs in Sweden. Where do you live? Have you seen someone in Stockholm? What is your diagnose so far?
    I live in Stockholm and visited many different doctors and opticians. With the exception of one doctor, they only let a nurse do an eye exam on me. They told me that I had no problems with my eyes, but of course that is not why I made an appointment. After insisting that dry eyes is indeed a problem, one doctor put some kind of stick in my lower eyelid and said that I cannot have dry eyes because my eyes produce tears.

    The most helpful ones were actually the opticians, who gave me much advice on how to make my eyes more comfortable. I guess that you actually managed to get a diagnosis? Do you live in Stockholm? One doctor told me that the only ones who can properly diagnose and treat dry eyes in Stockholm are S:t Eriks Ögonsjukhus and I was told that unless I had Sjögren's Syndrome or something similar, it would be a waste of time to go there because their resources are spread so thin.

    Leave a comment:


  • sunshinelover
    replied
    Originally posted by PiotrSWE View Post
    I'm interested in visiting the clinic in Oslo because all the doctors I have visited in Sweden have not done much else but recommend me eye drops and then dismiss me. Is it possible to email them first to describe my condition? It feels like it is too much to go into on the phone, and I do not want to spend half my visit explaining my condition. The range of tests they offer is amazing when the most advanced one I ever got here was a kind of stick in my lower eyelid to see if I have any tears. I have given up trying to get any help here in Sweden. Finally, I have never been to Oslo even though it is so close! So it would be a good opportunity to visit.
    Hi! I can also recommend the clinic, went there in october. I also agree with your experience on docs in Sweden. Where do you live? Have you seen someone in Stockholm? What is your diagnose so far?

    Leave a comment:


  • Toril
    replied
    PS: When you arrive at the clinic, they will ask you to show up 20 min. before the appoitment to respond to a dry eye questinaire on a computer/iPad. The result will be sent to the doctor immediately, so when you arrive in the office he'll alredy know a lot about your symptoms, possible drying medications you are on and severity of your dry eye.

    Leave a comment:


  • Toril
    replied
    Hi there!

    Yes, send them an e-mail, explain your condition shortly and tell you want to book an appointment. I went to see Dr.Ræder at this clinic in November, and I can highly recommend both him and the clinic. The waiting lists are not long (yet, as the clinic was started in September), so you'll most probably get to see him quite fast if you want to.

    Their website is www.torreoyneklinikken.no and you'll also find them on Facebook and Twitter.

    Good luck!

    Toril :-)

    Leave a comment:


  • PiotrSWE
    replied
    I'm interested in visiting the clinic in Oslo because all the doctors I have visited in Sweden have not done much else but recommend me eye drops and then dismiss me. Is it possible to email them first to describe my condition? It feels like it is too much to go into on the phone, and I do not want to spend half my visit explaining my condition. The range of tests they offer is amazing when the most advanced one I ever got here was a kind of stick in my lower eyelid to see if I have any tears. I have given up trying to get any help here in Sweden. Finally, I have never been to Oslo even though it is so close! So it would be a good opportunity to visit.

    Leave a comment:


  • sunshinelover
    replied
    Originally posted by Toril View Post
    Waiting is so frustrating :-s Did you try to call and leave a message?
    Unfortunately Only take calls half an hour per weak, but Ill try again on Monday I think.

    Leave a comment:


  • Toril
    replied
    Waiting is so frustrating :-s Did you try to call and leave a message?

    Leave a comment:


  • sunshinelover
    replied
    Fantastic!! That is the doc I saw at the clinic! The doc here in Sweden doesn't answer emails so I do not know what is happening to the application for Restasis. Frustrating...
    It it so weird. Eyes felt so good on Tuesday and then yesterday - bang! Awful again and probably some stye in the upper lid..

    Leave a comment:


  • Toril
    replied
    Dry eyes is getting attention in Norwegian magazines these days; this picture is taken from the latest issue of "Hjemmet." A couple of months ago there were also a lot of info about dry eyes in the magazine "Norsk Ukeblad." I like it! :-)

    Click image for larger version

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  • Toril
    replied
    Googled it now, and seems like a drop that it would be interesting to try as it contains 2 mg hyaluronic acid compared to 1 mg in Hylo-Comod. I love the bottles - preservative free, lasting for 6 months after opening and easy to bring with you in the bag. I tried Hylo-Care (containing a vitamin B called dexpantenol) a couple of years back, but they didn't give me the same relief as Hylo-Comod.

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