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Hi everyone, my name is Bob, I'm 41 and live in UK.
My problems first started when I had a virus in february last year, which I think was adenovirus. The virus got into my eyes and I had antibacterial drops, it cleared pretty quickly and I thought nothing of it, 2 weeks later I went to cinema and later that night I woke up with stabbing pain in both eyes.
After seeing my doctor and 2 opticians to no avail, I saw a specialist who told me the virus had caused rough spots on my corenas, he gave me Hylo-Forte (4 times a day) and Xailin night (ointment). I used them both for 6 weeks and when I came back he said there was no change, he made an appointment for 3 months later and talked about punctual plugs which scared me (obviously).
I then saw a 2nd specialist who was quite hostile and told me to put whatever combination of drops etc in that works for me and "don't come back". Since I had been struggling to get by using Hylo-Forte, and I found if I put it in too often my eyes got very sticky (once very red too), I started using systane preservative free instead.
After a while I noticed my lower eyelids were very red, fortunately this coincided with an appointment with another specialist. He told me my corneas were fine now, but there was inflammation/abrasion under the top eyelids and put me on FML. After about a week of improvement I noticed my lower eyelids were getting redder, my eyes/face were getting hot and I felt ill, so I stopped taking the FML (cold turkey, it was a weekend and I didn't know any better, but the specialist didn't seem that concerned).
I waited for my next appointment, but in last week all hell broken lose. Each night I would sleep for shorter and shorter periods of time and wake up with increasingly red lower lids and muck half sealing my eyes shut. When I saw him again he decided I had a mild case of droopy eye lids (causing friction etc at night), the inflammation was worse and had effected the top of corneas (which caused some pain again), and that I should've kept using the Hylo-Forte. He put me on prednisolene (preservative free) 2 times a day with view to increase it to 4 as I got used to it.
The side effects were very bad at first (feeling very ill, diarrhoea, pressure in ears, catarrah), but they got better after a few days fortunately. After 2 weeks on it I was up to 4 a day and both eyes looked and felt great (cornea pain was decreasing too)...
Then I got a cold and the right eye was getting a lot redder and hurting more, after a week and a half I woke up and my right lower eyelid (and corner) were uniformly dark red and stayed that way for the rest of the day. Next day it had clear up somewhat, saw my doctor who wasn't concerned (are they ever?), phoned specialist following monday and he wasn't concerned (are they ever?).
Over next week I noticed it wasn't going back to how it was before, the lower eyelid was still redder than left, looked ugly (blood vessels etc), sometimes it would get sore and hot, my eyeball felt cold a lot (as if there was a lot of evaporation) and I often had cornea ache/pain. By end of that week it was getting difficult to manage, the following monday I phoned specialist and found out he was on holiday, so I increased Hylo-Forte in right eye to 8 times a day, started taking omega-3 again (difficult to find any I tolerate), which allowed me to get by.
I managed go get an appointment the following week at short notice, but he didn't take my concerns seriously (didn't even take that it was hurting seriously). At my request he tested a few meibomian glands in my lower right eyelid, it felt like glue came out, very sticky (is it supposed to be that sticky?), he said it was thicker than average, flowing, clear, and I didn't have blepharitis (not sure he's aware of other possible problems).
That was 2 days ago, left eye looks/feels great, right still doesn't, though I think it might be a bit better after he pressed those glands. So confused about what's wrong and what to do, any thoughts/hellos welcome!
My problems first started when I had a virus in february last year, which I think was adenovirus. The virus got into my eyes and I had antibacterial drops, it cleared pretty quickly and I thought nothing of it, 2 weeks later I went to cinema and later that night I woke up with stabbing pain in both eyes.
After seeing my doctor and 2 opticians to no avail, I saw a specialist who told me the virus had caused rough spots on my corenas, he gave me Hylo-Forte (4 times a day) and Xailin night (ointment). I used them both for 6 weeks and when I came back he said there was no change, he made an appointment for 3 months later and talked about punctual plugs which scared me (obviously).
I then saw a 2nd specialist who was quite hostile and told me to put whatever combination of drops etc in that works for me and "don't come back". Since I had been struggling to get by using Hylo-Forte, and I found if I put it in too often my eyes got very sticky (once very red too), I started using systane preservative free instead.
After a while I noticed my lower eyelids were very red, fortunately this coincided with an appointment with another specialist. He told me my corneas were fine now, but there was inflammation/abrasion under the top eyelids and put me on FML. After about a week of improvement I noticed my lower eyelids were getting redder, my eyes/face were getting hot and I felt ill, so I stopped taking the FML (cold turkey, it was a weekend and I didn't know any better, but the specialist didn't seem that concerned).
I waited for my next appointment, but in last week all hell broken lose. Each night I would sleep for shorter and shorter periods of time and wake up with increasingly red lower lids and muck half sealing my eyes shut. When I saw him again he decided I had a mild case of droopy eye lids (causing friction etc at night), the inflammation was worse and had effected the top of corneas (which caused some pain again), and that I should've kept using the Hylo-Forte. He put me on prednisolene (preservative free) 2 times a day with view to increase it to 4 as I got used to it.
The side effects were very bad at first (feeling very ill, diarrhoea, pressure in ears, catarrah), but they got better after a few days fortunately. After 2 weeks on it I was up to 4 a day and both eyes looked and felt great (cornea pain was decreasing too)...
Then I got a cold and the right eye was getting a lot redder and hurting more, after a week and a half I woke up and my right lower eyelid (and corner) were uniformly dark red and stayed that way for the rest of the day. Next day it had clear up somewhat, saw my doctor who wasn't concerned (are they ever?), phoned specialist following monday and he wasn't concerned (are they ever?).
Over next week I noticed it wasn't going back to how it was before, the lower eyelid was still redder than left, looked ugly (blood vessels etc), sometimes it would get sore and hot, my eyeball felt cold a lot (as if there was a lot of evaporation) and I often had cornea ache/pain. By end of that week it was getting difficult to manage, the following monday I phoned specialist and found out he was on holiday, so I increased Hylo-Forte in right eye to 8 times a day, started taking omega-3 again (difficult to find any I tolerate), which allowed me to get by.
I managed go get an appointment the following week at short notice, but he didn't take my concerns seriously (didn't even take that it was hurting seriously). At my request he tested a few meibomian glands in my lower right eyelid, it felt like glue came out, very sticky (is it supposed to be that sticky?), he said it was thicker than average, flowing, clear, and I didn't have blepharitis (not sure he's aware of other possible problems).
That was 2 days ago, left eye looks/feels great, right still doesn't, though I think it might be a bit better after he pressed those glands. So confused about what's wrong and what to do, any thoughts/hellos welcome!
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