Hello from Sweden

[Hajen13]

Hello again,

Things changed from one day to another i guess. Before i could make another appointment with the doctor i remembered that there
was a loose thread i had to take care of first.

When the doctor examined me last summer he said that he could not see the exact cause of the inflammation in the eyelids but
that he had some suspicions that it could be rosacea and he wanted med to take contact with a dermatologist.

I did that a couple of days a go, and got the confirmation that i actually have rosacea. So i guess that explains
some things. The rosacea is very light, i always have been thinking that my skin is just a little bit sensitive but never
i would have suspected rosacea.

Of course i will contact the doctor again but just 2 questions if anyone has the time and experience,


* Does this change the treatment of the eyes in some way? From what i understand,
not really.

* The skin clinic wanted me to make an appointment for a treatment in the clinic and also
recommended some products (some really cheap ones...). Is it worth trying
to "fight" against this disease? Could it get worse untreated?

/ Marcus

[Guest]

The treatment should be relatively similar for rosacea. I’m worried about the gland loss, you gotta protect those remaining glands. I think high dose doxycycline are 200mg a day, IPL, topicals steroids like lore max or alrex (if you have it), warm compress, or cold compress try both see which is best. Try any drops that don’t agitate your eye. This is my best advice and I genuinely hope you get better.

[Hajen13]

The treatment should be relatively similar for rosacea. I’m worried about the gland loss, you gotta protect those remaining glands. I think high dose doxycycline are 200mg a day, IPL, topicals steroids like lore max or alrex (if you have it), warm compress, or cold compress try both see which is best. Try any drops that don’t agitate your eye. This is my best advice and I genuinely hope you get better.

Thank you for the advice! So far i think eye drops only make things worse for me, no matter the type. Yes the speed of the gland loss is really something that can keep my mind busy when going to sleep.. The 16th of december i have a new appointment with the eyedoctor so hopefully some answers after that.

[gilles]

Thank you for the advice! So far i think eye drops only make things worse for me, no matter the type. Yes the speed of the gland loss is really something that can keep my mind busy when going to sleep.. The 16th of december i have a new appointment with the eyedoctor so hopefully some answers after that.

Hi Hajen, have you tried cyclosporine eyedrops (0.05%) like Restasis or Ikervis, or lifitegrast ophthalmic solution eyedrops (e.g. Xiidra)? These eyedrops can also be made by a sterile laboratory, atleast that's how I get them.
And who told you about the glands dying off? My doctor told me that they don't die and are flexible of the stress they get because of the inflammation, certainly with people of young age.

[Guest]

My first name is Anthony. I have been suffering from dry eyes for a number of years. I have been using Refresh mega 3 for dry eyes and Alaway for allergy. But so far, they can only offering me some relief when applying but very soon the symptoms come back. What should I do?

[Hajen13]

Hi Hajen, have you tried cyclosporine eyedrops (0.05%) like Restasis or Ikervis, or lifitegrast ophthalmic solution eyedrops (e.g. Xiidra)? These eyedrops can also be made by a sterile laboraty, atleast that's how I get them.
And who told you about the glands dying off? My doctor told me that they don't die and are flexible of the stress they get because of the inflammation, certainly with people of young age.

Hi! I have not tried these products but i will keep them in mind, first i need to hear what the doctor says on monday but thank you! I was told the last time that 50% of my glands are basically dead and that is why its extremely important to "take care" of the 50 percent that are still there.

[gilles]

I have only just read this whole topic today and came to some interesting insights. (funny how this forum might be the only one where not haven't been able to read the whole topic is not seen as lazy/unpolite, as reading with a dry eye condition is not that easy).

@hannahmaywils Meibum Ian Have you both checked if you can't let your drops be made in a (sterile) laboratory in your neighbourhood? My cyclosporine eyedrops are made via a sterile laboratory, which is part of the clinic where I am consulting an eye specialist. They even added isoptotears rather than oil (castor I think, which would then be exact to Restasis) because it might sting (the dry spots in the corner of my eyes can not always tolerate oil/ and in case of regular eyedrops: presevatives of other eyedrops i.e.)

Hajen13 I read that you wanted to know if there were other people with MGD without it being the result of LASIK or product/drug or something. Well, for me it is not the result of anything obvious (other than screen use and cycling without eye protection).
And, in contrary to you, I believe it might be one of the reasons (because a lot of factors might complement) as not fully and regularly blinking. This affects a lot of people these days on a regularly basis as a lot of us tend to be working over 8 hours a day behind a screen, and even more, when coming home.
Add to this factors like air conditioning, windy environments - e.g. when commuting, cycling without glasses - and a greasy skin and you might have enough factors resulting in MGD. This is where the chronic, vicious circle starts.

The greasy skin is something which might be very important, as a lot of people here might blame - as cause - accutane as the reason for their dry eyes - which might be the reason => permanently, shrinked glands. On the other hand, it might also point to the fact that a lot of us have a greasy skin, thus needing - or having needed - minocycline and accutane in order to help with acne for example. Acne being very similar to meibomian glands, and so you might have the same thing happening: blocked glands. But here, with the meibomian glands this blockage (with the bacteria that are formed like within normal pimples) results - as Milo007 already pointed out - in dry eyes, as the function of meibomian glands is to secrete oil to prevent tears from evaporating. So that's why I wanted to stress the fact that e.g. cyclosporine could help in this situation, as it can stop the inflammation and help the flow of oil again as the glands are less and less blocked and secreting better oil-quality as the old, blocked oil gets out.

Hajen13, do you by any chance have a greasy skin? And do you still do the eye massages after the warmth compress? As I am not sure this might be good / effective (e.g. if having a greasy skin) as I read on this forum it might do damage (collapse of the gland canals or something?) and maybe just soft full blinks while having heat on the eyelids - from e.g. heated eye compress (Bruder, Therapearl, BlephaSteam, etc.) for a long enough time and warm enough temperature - might make the oil come out bit by bit.

As for the resistance of bacteria to antibiotics, don't forget the food we eat. Cows for example, getting antibiotic injections, which will end in our food too one way or the other. Even our water that is filtered might not totally be filtered against antibiotics.
But don't forget: the medication as minocycline and doxycycline are mostly used for there anti-inflammatory effects, as scientific papers suggest, and all for the anti-bacterial effect.

Important: some if these are just my thought and findings.

[Zenab07]

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