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  • hey folks.

    man oh man. i never ever knew that there were so many people around who've gotta deal with this stuff. really. i was shocked to find this site, and even more shocked to read some of the stuff in this forum, because it's so FAMILIAR. so familiar, and people have been trying to tell me for years that this whole eye thing is just me being overly sensitive.

    i'm 19, from maine. and i've always had trouble with my eyes. my vision has always been perfect, 20/20. but one of my first memories ever is waking up to gritty eyes (i must've been four or five) and hoping there wasn't anything severely wrong with them. in kindergarten i got in trouble for putting chapstick all around my eyes. chapstick! it's sort of hilarious to think of that now, knowing that i must've been dealing with this same ol' **** even when i was that small.

    i was a rough little country kid, always outside in the mud, catching frogs and running barefoot through the woods. and my eyes didn't get bad enough to stop me from doing that stuff until i was in 8th grade or so. and from there it just got worse.

    on my very first day of high school, i woke up with a broken blood vessel in my eye. way to start a new life-chapter, right? high school was hell. not just because of the eyes, but they did play a big part in it. the whole high school thing just didn't really work for me. i kept to myself and didn't go to classes much, dealt with severe depression and anxiety that wouldn't quit. missed most of my sophomore year, stayed home sleeping and writing nonstop (creative writing was the one class i wasn't happy about missing). i used eye drops all the time, and although they didn't seem to do all that much, i had to have them right on me wherever i was, or i'd panic. my eyes got bloodshot when i was nervous, when i was out in the wind, when the lights were too bright, when it was cold out. sometimes it hurt just trying to keep them open. i couldn't look up at the chalkboard for long, i couldn't focus on anything.

    i ended up self-schooling/home-schooling throughout my junior year, and graduated early. not with flying colors or anything, i hardly made it. but i was out once and for all.

    things got better. everything got better, except for my eyes. i felt good emotionally, physically. started feeling comfortable in my own skin again.
    wore sunglasses outside, inside when i had to. goggles when i really had to (goddamn, talk about embarrassing, though, seriously).

    in the past couple years, i've been traveling. i've driven around the country a couple times (with family, with friends, but mostly by myself), living out of my car and tenting around for months at a time. painting on the way, selling paintings in the bigger cities, and sometimes working for a few days at farms along the way (when i was in utah last summer, i spent a week picking raspberries for this sweet family i met.. it was beautiful. and delicious, too. raspberries with breakfast lunch & supper). spent a month in new orleans, a month in the southwest, another month driving back to maine.

    my eyes were always a hindrance, of course, and limited lots of the things i could comfortably do, but i managed pretty well.

    right now i'm back here in maine, glorious old winter-cold maine. and i don't know if it's the cold & wind & dryness of maine winter or not, but i've been having a really rough time with my eyes.

    i have been looking for a job, and it's incredible how tough this makes it. squinting through interviews, eyes stinging and watering, trying desperately to appear respectable and not have to close them or rub them with my fingers. i don't know if other people experience this or not. i don't think i've read anything about it. but. when my eyes start acting up, i get veryvery dizzy and disoriented, get awful headaches, and it makes it hard for me to concentrate and fully comprehend everything someone is asking me during interviews. and, of course. even if i nail the interview, the job poses the same problem. and it's just SO frustrating. i'm not even sure what to do about it, really. it's really starting to worry me. i mean, what if i actually can't WORK with my eyes like this? what happens then?

    (i paint on the side, and lately i have been looking into getting my art displayed in some galleries & shops. this is exciting, and i really hope it works out.)

    i was prescribed restasis a couple weeks ago, and have been taking it religiously since then. it seems to be making my eyes worse right now, strangely enough. but i'm hoping that'll wear off and the stuff will eventually help me out.

    in the meantime, i am so glad that i found this website. i look for to talking with all of you, and wish you the best of luck with this.

    - caroline

  • #2
    p.s. HA, i didn't know i wasn't supposed to swear on here. well, i guess i don't mind my swears being blocked out by little stars.

    Comment


    • #3
      You sound like a free spirit with eyes that keep you down once in a while. I have always wondered if children ever experience dry eyes and you are the first person I have come across that states that you've had dry eye from as young as 4-5 years old. Obviously you are not only a free spirit, but you also have toughness.

      Be patient with new treatments. Restasis can take months to show signs of improvement. Even then, it can take many more months for further improvement to appear. Be patient! I know that's hard to do when you are young and on the go. Also, I recommend that you do warm compresses about 2x/day with a warm wash cloth, get a humidifier for your room since you are in Maine in the winter, and check out some other ideas from what I and others wrote in the link below. Best. YGB

      http://www.dryeyezone.com/talk/showthread.php?t=2667

      Also, you mention that you do not know why you have dry eye. Have you gone to see an MD/OD? If so, have they given you any clues?

      Comment


      • #4
        Bleepin' bleep of a bleep

        Heh -- I'd forgotten that when we set up the forum, we enabled the "bleep" function (profanity filter), which replaces certain words with asterisks.

        Just so it's clear to everyone, we have no problem with occasional mild profanity (hey, sometimes it's the only word that's appropriate, right?), but out of deference to those who are a bit sensitive about such things, please imply ("my bleepin' lid margins") or disguise ("ph**ey on Visine") the term, rather than stating it explicitly.

        (I'm h*ping thi* do*sn't st*rt a unf*rtun*te tren*!)

        Comment


        • #5
          So glad you have found this forum. The thing that is glaring at me by your post is that you never mentioned being seen by a Dry Eye Specialist or why exactly you have dry eyes. Have you been worked up thoughly? As one of the doctors here said to another poster, why would a 19 year old girl have such severe dry eyes? Don't assume your doctor knows it all on dry eyes. Sooooooooo many doctors don't have the time, patience or information to correctly diagnosis the reason for your dry eyes. Tell us more about what type of doctors and testing you've been through. You can't stop fighting this until you find someone who can tell you why and what is wrong with your eyes. Let us help you if we can. Welcome.

          Comment


          • #6
            oh, me and my potty mouth. thank you for responding, you three. i appreciate your advice!

            as far as doctors go. i've been to two eye doctors before, both for a general eye exam. i'm not up on the names of the tests or anything, but i do remember that they put dye in my eyes and did several of those little air-puff tests. i saw the second doctor a year or so ago. i went in and told him what i was dealing with and that i was really hoping that there was something i could do to help the symptoms. i was secretly (and ignorantly, i suppose) hoping that they'd find something obviousy wrong and easily fixable. that they'd be able to just give me a pill or a thing of eye drops and it would just go away. the doctor did the exam and ended up telling me that my eyes looked fine, even if they were a little dry. and then he told me i should just buy some wrap-around sunglasses.

            i don't believe there are any dry eye specialists in my area. what would be the next best thing, do you think?

            thanks again!

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