Hello, all.
I got my blood taken for signs of autoimmune disease, and my doctor suspected from the results that I have autoimmune hepatitis and might require a liver transplant. I was given this diagnosis the day that I woke up with several prominent eye floaters in my right eye, and light flashes. This caused a lot of concern for my doctor who had me go to an eye doctor immediately.
I waited THREE HOURS in the clinic only to have the doctor constantly interrupt me and dismiss anything I had to say. He looked in my eyes for two seconds and told me eye floaters were normal and to not worry. I know they are but the sudden numerous amount of floaters and the concern of my doctor seemed to be a red flag! I told him eye drops do not work for me and the pain is severe, he gave me a coupon for theratears (that we later found out was expired) and told me to see him in 6 months. I still have the eye floaters and am constantly aware of them on top of the headaches I get from my eyes being in so much pain.
A week later I went to a specialist that the doctor who took my blood test referred me to. He took a look at my test results and said that they were very borderline and inconclusive, and that he highly doubts I even have an autoimmune disease. Just to be sure he scheduled an appointment for an ultrasound on my liver that I'm going to in a couple of hours.
I am so tired of all of this. No doctor I've been to has been able to agree with another on what's wrong with me, and all this talk of autoimmune disease and then no autoimmune disease has been scaring my family and I. I've been unable to leave the house much since last year due to this pain and I can't take it anymore. People my age are going out and living life and I'm just stuck here scared and in pain. Why isn't dry eye taken more seriously!? I wish there were as much awareness for it as there are for other diseases. I don't want eyedrops meant to only mask the symptoms that don't work, I want a cure and more people actively looking for said cure. I want people to know that while it can be just a minor annoyance for some, it can be extremely debilitating for others. I'm not even in my 20s and I find it very difficult to leave the house on account of the suffering I'm going through. Why is this not more of an issue!?
I'm very sorry for the rambling, I'm just so frustrated and depressed. I want to be out and enjoying life, I was working so hard on my goals and ambitions when this started and now I feel as though I've hit rock bottom. I've spent so much of this year so far crying from pain and hopelessness, and I don't know what to do. My heart goes out to everyone here suffering with this terrible disease. I think I might create a blog soon about dry eyes and hope that it gains some attention from a younger demographic.
I got my blood taken for signs of autoimmune disease, and my doctor suspected from the results that I have autoimmune hepatitis and might require a liver transplant. I was given this diagnosis the day that I woke up with several prominent eye floaters in my right eye, and light flashes. This caused a lot of concern for my doctor who had me go to an eye doctor immediately.
I waited THREE HOURS in the clinic only to have the doctor constantly interrupt me and dismiss anything I had to say. He looked in my eyes for two seconds and told me eye floaters were normal and to not worry. I know they are but the sudden numerous amount of floaters and the concern of my doctor seemed to be a red flag! I told him eye drops do not work for me and the pain is severe, he gave me a coupon for theratears (that we later found out was expired) and told me to see him in 6 months. I still have the eye floaters and am constantly aware of them on top of the headaches I get from my eyes being in so much pain.
A week later I went to a specialist that the doctor who took my blood test referred me to. He took a look at my test results and said that they were very borderline and inconclusive, and that he highly doubts I even have an autoimmune disease. Just to be sure he scheduled an appointment for an ultrasound on my liver that I'm going to in a couple of hours.
I am so tired of all of this. No doctor I've been to has been able to agree with another on what's wrong with me, and all this talk of autoimmune disease and then no autoimmune disease has been scaring my family and I. I've been unable to leave the house much since last year due to this pain and I can't take it anymore. People my age are going out and living life and I'm just stuck here scared and in pain. Why isn't dry eye taken more seriously!? I wish there were as much awareness for it as there are for other diseases. I don't want eyedrops meant to only mask the symptoms that don't work, I want a cure and more people actively looking for said cure. I want people to know that while it can be just a minor annoyance for some, it can be extremely debilitating for others. I'm not even in my 20s and I find it very difficult to leave the house on account of the suffering I'm going through. Why is this not more of an issue!?
I'm very sorry for the rambling, I'm just so frustrated and depressed. I want to be out and enjoying life, I was working so hard on my goals and ambitions when this started and now I feel as though I've hit rock bottom. I've spent so much of this year so far crying from pain and hopelessness, and I don't know what to do. My heart goes out to everyone here suffering with this terrible disease. I think I might create a blog soon about dry eyes and hope that it gains some attention from a younger demographic.
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