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Hello Dominorose,
Because you do need lots of medical support, maybe it's good for you to get used to questioning all your doctors and building good therapeutic relationships with them. Obviously if they are not helpful, they are not such good doctors, or they are too busy to be very useful. It's really important that you put your needs first and get the courage to contact a prescribing doctor to clarify any doubts about prescriptions. They charge a lot of money, and should have a good team to deal with queries, one way or another.
I think the first thing is to ask your question 'is it safe?' to the prescribing ophthalmologist of the steroid Vexol. And whether an antihistamine is useful for hypothyroidism? And what are the signs of eye allergy they are treating?
Also you need a follow-up eye pressure check (intraocular pressure) if you start a steroid, although any Optometrist could do that too. My daughter has used steroid eyedrops for a while, and I did look into this, but sometimes we need it to control inflammation if the inflammation is more harmful. A doctor must tell us exactly what any possible side effects are, and exactly what the purpose of using a medication is. Then we can choose.
Are you regular at Quinze-Vingt? Can you go back regularly with questions to adjust the treatment and eye management ongoing? (I don't know Paris but hopefully someone will post.) If things get worse, doctors expect us to come back for adjustment. It took me years to realise this. Is there one Ophthalomologist and team you want to work with? I am thinking that if, for example, you wanted to try scleral lenses eventually, it is best to be with a national eye hospital where newer treatments are easily available.
Is your nutrition status OK now? are you iron-deficient, for example? drinking plenty water? Are you taking fish/flaxseed oil supplements?
Anxiety is terrible until we settle into a treatment routine and the eyes start to feel better. Unfortunately in Emergency we sometimes get all sorts of random decisions and your eyes obviously haven't stabilised. Doctors are just not as well networked on practical details as we are, like wraparound sunglasses and different hot/cold compresses and cleaning agents - maybe take another look at Rebecca's 'Coping 101' www.dryeyezone.com. I would see how your current doctors respond to your questions and suffering before moving on. Do you have friends or family to go with you to the doctors? It helps so much to have an 'advocate' or supporter.
It helps to make a simple Diary of symptoms, diagnosis, treatments (pain/burning can be rated 1 to 10). It also shows how our lives are affected and helps doctors to consider that and review the management.
Love from London
Because you do need lots of medical support, maybe it's good for you to get used to questioning all your doctors and building good therapeutic relationships with them. Obviously if they are not helpful, they are not such good doctors, or they are too busy to be very useful. It's really important that you put your needs first and get the courage to contact a prescribing doctor to clarify any doubts about prescriptions. They charge a lot of money, and should have a good team to deal with queries, one way or another.
I think the first thing is to ask your question 'is it safe?' to the prescribing ophthalmologist of the steroid Vexol. And whether an antihistamine is useful for hypothyroidism? And what are the signs of eye allergy they are treating?
Also you need a follow-up eye pressure check (intraocular pressure) if you start a steroid, although any Optometrist could do that too. My daughter has used steroid eyedrops for a while, and I did look into this, but sometimes we need it to control inflammation if the inflammation is more harmful. A doctor must tell us exactly what any possible side effects are, and exactly what the purpose of using a medication is. Then we can choose.
Are you regular at Quinze-Vingt? Can you go back regularly with questions to adjust the treatment and eye management ongoing? (I don't know Paris but hopefully someone will post.) If things get worse, doctors expect us to come back for adjustment. It took me years to realise this. Is there one Ophthalomologist and team you want to work with? I am thinking that if, for example, you wanted to try scleral lenses eventually, it is best to be with a national eye hospital where newer treatments are easily available.
Is your nutrition status OK now? are you iron-deficient, for example? drinking plenty water? Are you taking fish/flaxseed oil supplements?
Anxiety is terrible until we settle into a treatment routine and the eyes start to feel better. Unfortunately in Emergency we sometimes get all sorts of random decisions and your eyes obviously haven't stabilised. Doctors are just not as well networked on practical details as we are, like wraparound sunglasses and different hot/cold compresses and cleaning agents - maybe take another look at Rebecca's 'Coping 101' www.dryeyezone.com. I would see how your current doctors respond to your questions and suffering before moving on. Do you have friends or family to go with you to the doctors? It helps so much to have an 'advocate' or supporter.
It helps to make a simple Diary of symptoms, diagnosis, treatments (pain/burning can be rated 1 to 10). It also shows how our lives are affected and helps doctors to consider that and review the management.
Love from London
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