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Neilw, That's very good advice to help with not sleeping. For years I woke up worrying, going on the computer, and those have not been useful hours for thinking. Audiobooks would've been better during the night because the sleep was more important.
Tiera and anyone on high-dose oral meds. Just for general info, if anyone gets eye symptoms with head pain that you suspect may not be dry eye - like peripheral vision wavering, flashing lights, central grey dots, temporary visual obscurations (eg like camera-shutter) - get checked for intracranial hypertension secondary to the oral meds (see US FDA on the med for side effects). The first step, they should rule out obvious causes with scans, then neuro-ophthalmology assess and monitor the optic nerves including doing a retina exam for papilloedema on the optic nerve heads (a good optometrist would recognise this). There's increased incidence of idiopathic intracranial hypertension with weight gain too but it's not often recognised straight away (see US (IHRF) Intracranial Hypertension Research Foundation or IIH UK).
It's important to list all oral meds to eye docs and keeping a detailed Headache Diary (scored 1-10, plus a small diagram of head where pain is) so they can monitor with visual field checks and retina exam in the Eye Clinics while they're doing the anterior segment stuff.
ColinP, Good to hear you're doing so well.
Tiera, Can they adjust your meds to improve on the dry eye? Have you got ophthalmologist?
Tiera and anyone on high-dose oral meds. Just for general info, if anyone gets eye symptoms with head pain that you suspect may not be dry eye - like peripheral vision wavering, flashing lights, central grey dots, temporary visual obscurations (eg like camera-shutter) - get checked for intracranial hypertension secondary to the oral meds (see US FDA on the med for side effects). The first step, they should rule out obvious causes with scans, then neuro-ophthalmology assess and monitor the optic nerves including doing a retina exam for papilloedema on the optic nerve heads (a good optometrist would recognise this). There's increased incidence of idiopathic intracranial hypertension with weight gain too but it's not often recognised straight away (see US (IHRF) Intracranial Hypertension Research Foundation or IIH UK).
It's important to list all oral meds to eye docs and keeping a detailed Headache Diary (scored 1-10, plus a small diagram of head where pain is) so they can monitor with visual field checks and retina exam in the Eye Clinics while they're doing the anterior segment stuff.
ColinP, Good to hear you're doing so well.
Tiera, Can they adjust your meds to improve on the dry eye? Have you got ophthalmologist?
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