Hi everyone. I am hoping that those of you with RCEs can satisfy my curiosity. When you had your 1st corneal erosion, did you have any other illnesses around the same time? Thanks.
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Out of the blue...
No illness, no history of eye problems in particular, although I have often suspected other people's eyes didn't feel like mine- I have always had minor dryness, light senstitivity, and filmy feelings from time to time, but often thought it was contact lenses (Gave them up 10 years ago) then allergies, makeup sensitivity etc.
So my RCE thing came pretty much out of the blue, no injury or illness around that time. The first few episodes were pretty minor, but annoying, and over about 7 nights it intensified each night (then twice a night) until I went to Emergency and started all this research.
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Started when I was approx 20 years old
Mine started very slowly and happened over a period of years where it has become worse... (1980 onwards...)
I didn't realise what was even happening to me for a number of years..
My problem is only at night..., never in the day...
I tried everything and nothing worked... I now wear contact lens at night and the problem has cleared up..., but I still have issues with dry eye..., but as the eyelid can no longer "stick" the errosions are under control...
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Mine started about 15 years after an injury, right in the spot where the injury was, but my eyes had felt terrible for years before that happened. I could not get any help for that "menthol feeling" that Rojzen so clearly labeled. I also have EBMD, and I am sure that is why the injured part never healed correctly and the rest feels uncomfortable.
Welcome, ColinA!
--Liz
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