i just cannot stand this anymore.... :(

[littlemermaid]

Is there any chance you still have infection from the contact lenses or solutions? Eg Have you had periods when your eyes have not been red?

[nicolasdu92130]

honestly i don't think, contact lenses are over since 2012 for me, but before ihad a bad solution so it must have worsen things.
about my eyes, they have always been irritated since i got my problem and of course as the dry eyes was worsening, irritation did the same.

will look about oïl-based dropsb since its my problem.

[littlemermaid]

Was the bad solution Bausch and Lomb Renu, or did your normal contact lens solution go bad?

[NotADryEye]

Warm compresses should have melted the thick toothpaste-like meibum. If you are having no success with warm compresses, the temperature may be too low or you may need to do compresses more frequently, or, most likely, your mg's are blocked with fibrous tissue at the orifice or possibly deeper. To remove the fibrous tissue, you need something more than heat. In this case, probing is the best solution. It's best to probe before proceeding with Lipiflow since the heat and massage won't open the glands and the meibum will have no where to go but further into the glands which is harmful and not beneficial.

A very low dose of doxycycline e.g. 20mg daily, can help to clear up the meibum by reducing inflamation in the glands.

O3 is also important. The cells use O3 to synthesize meibum. If your 03 to Omega 6 ratio is poor, the mg glands will use the 06 instead of 03 which contributes to inflamtion and poor meibum quality.

I've found that eliminating all foods to which I have sensitivities (not allergies, this is different) has helped tremendously with inflamation. You have to be tested for sensitivites as it is virtually impossible to figure out the sensitivities any other practical way.

[nicolasdu92130]

lol thx for the infos but that is too much for me ( can't ask everything to my parents since they pay everything). okay for omega 3, i take them daily, same for doxy, about my MG, i don't want to speculate anything, will see. Maybe its my massage that is not optimal i don't know but Lipiview will be a great help for me.

[NotADryEye]

Yes, if you are massaging the lids but the glands are not opened, plugged with fibrous tissue for example, you can definitely make things worse. I began massaging without knowing that my glands were blocked and two weeks later I was no longer to open my eyes.

[Jade]

Whenever I use a steroid drop, anti inflammatory drop, or an allergy drop it always makes my dryness and eye pain worse. Castor oil is acidic and that's why it and Restasis burns.
(Castor seeds shouldn't be processed anymore anyway because they're neurotoxic to the people who have to touch them because they contain ricin)
Do you have Refresh Plus in France? It's almost like plain saline but hypotonic which is supposed to be good for the ocular surface. It feels good in my eyes to use occasionally.
Good luck with school.

[nicolasdu92130]

yes castor oïl is acidic lol, the docs said it was supposed to "soft my eyes" but no its just burned. About steroid drop or anti inflamatory drop there is oftena preservative likke BAK so it could be at issue for the extra dryness.

I have Refresh in my fridge, its composed of Povidone, use it sometine but Vismed with sodium of hyaluronate is better for me.

some décisions i made in the night since i think i have rosacea so i should go easy with heat: no more hot shower lol will be just warm or even cold and will shorten the warm compress =>5-6 mns instead of 10 with Blephasteam.

[littlemermaid]

Nicolas ~ that's so good to hear, that you are noticing what makes things better for you to bring about healing. We consult and pay the docs, yes, for their knowledge and experience, but at the heart of this problem, you are taking control of those good steps for improvement from where you are right now.

[nicolasdu92130]

yep, and just bought a Liposome Spray like Tear Again to go aloong with Vismed because it is supposed to help with the lipid layer which is my core problem i think. will post update about the result

[nicolasdu92130]

hm hm hm i would ,like to say that my eyes are a bit better right now but no lol, they are pretty bad, i recently got clearly meibomium spot on the lid which i have not had since months, my eyes have begun to itch (why???), crust have reaperaed in the morning at the corners on my eyes, every blink is difficult (sticky, sometine even a little painful) and same problem with Wind outdoor.
btw i received my wraparoud glasses ( no Wilex Airrage in France ), they are not perfect ( Wind can enter into my eyes) but its better than nothing and with friends i added a bit of foam.
But the problem is not about these glasses lol, the problem is that i won't be happy if my eyes are not improving cause wilex is not a treatment for me, i have been for months without going out and thus without any attacks of Wind on my eyes and no change.
just so confused about whats going on and why nothing works for me ( O3, allergy eye drops, Warm compress, Doxy, eye drops, homepathy...). do not have motivation for anything anymore
lipiflow will be a life saver or not lol, lipiview is for Friday my finger are very very crossed for it , i really need a miracle and i think i deserve it, can't do more than what im doing and what i have done

[NotADryEye]

Itching is usually due to allergy. Maybe you are allergic to something in the lipisome spray?
Crusting is usually a sign of bacterial infection. Is there a lot of crusting?

You may need to see a doctor.

[ebel]

they told me to not use any eye drop 24h before lipiview (lol will be hard^^)

On the clinic where I did the lipiflow, they had told me the same. So, I pleaded that it would be impossible to stay so long without dripping drops (if I really could stay 24 h without eyedrops, I would have stayed. But to me it’s impossible). I asked them to check if it would be really necessary. Then they said that 4 hours would be enough.
After doing the Lipiview, the doctor told me I could have gotten less time. I don’t know if he said that as a general rule, or if he was referring specifically to my case.
If possible, check this information, because if you are already bad, staying so long without dripping drops can make you worse. It is obvious that our will is to follow exactly what they say, if only because the treatment is very expensive and we don’t want that a false diagnosis prevents us from doing the lipiflow.
Just one more thing. What is your level of Vitamin D? If it is low, it may increase the inflammatory process.

[nicolasdu92130]

Okay Lipiview review:

Received by doc ALOU - GANEM, a specialist in that stuff.
First of all she looked at my eyes with a slitlamp and said that my lids look very good to her, they are normals (no dandruff, styes or stuff like that) and thats a good thing because otherwise treatment would be more complicated.

She also said that all the treatments i have been doing for months ( DOXY, Blephasteam + massage+eye drop ect ) even if they did not make me conformtable, they preserved the good state of my eyelids.

Blink Analyser: hopefully i have read story about people blinking "better" than usually so i tried to blink normal and the result is that my blink is incomplete so she gave me Blinking exercises ( if you ask i can describe you ). She said that the contact beteween the upper and lower lid (even if it is not seeable, 1 milimetter is enough to give an incomplete blink) is not complete especially in the left eye.

Meibomian Gland Evaluator: then the doc pressed my glands with that little object to see the quality/quantity of oïl coming out. She said that my glands were blocked, tooth-paste like. So in my case Lipiflow is appropriate, but she told me that there is like 15 % of fail with Lipiflow. But im not scared about it, and she said that in my case it should work.
She also told me to continue anti-inflammatory eye drop at night+ anti allergy drops because allergy and dry eyes are very often linked.

Lipiflow is on Tuesday, so im very impatient and confident, i know it will work (or at least give me a little relief).

[farmgirl]

Can't wait to hear your results...F/G