i just cannot stand this anymore.... :(

[littlemermaid]

Have you got a different eye lubricant or tear substitute to the castor oil one? one which keeps your sensitive eyes comfortable? Are you still doing MGD treatments? It might take a while to heal your eye surface after the contact lenses. MartyM1985 was pretty low last winter but now he sounds great! I would read SAAG's posts to you again because she is very good on how we feel about this.

[nicolasdu92130]

What anti-inflammatory eyedrops did they give you? Someone here might have experience with them. Are you still in pain even after 20 days? or is it still red eye?

they give me : INDOCOLLYRE for anti-inflammatory non steroid drop for 6 months
VEXOL for anti-finlammatory steroid drop for 20 days

But nothing change, and yep my eyes is red and irritated, no improvement so far and i have like 3 days left after the end of Vexol.

and im still in dryness and incomfort so im worried about this.

[littlemermaid]

What anti-inflammatory eyedrops did they give you? Someone here might have experience with them. Are you still in pain even after 20 days? or is it still red eye?

[nicolasdu92130]

Bon catalogue! OK, ils sont sérieusement lunettes pour la sécheresse oculaire, mais j'adore la monture de lunettes d'écaille. C'est un truc Ironman (if Google translate let me down there that is so embarrassing ) They are also saying they do prescription sports wraparounds, which is quite rare I think.

Lol did not understand everything but yes they do prescription glasses^^
by the way i plan to put sunglasse the first days of school in order to manage the redness and to make understand people that i have eye problems.
And then when i will receive my glasses for dry eyes, people will already aware that i have problems with my eyes. Hope it will happen like thath lol^^

About non - steroid anti-infammatory drops, how long do they start to work?? its been 20 days and nothing changed in inflammation ...

[littlemermaid]

Bon catalogue! OK, ils sont sérieusement lunettes pour la sécheresse oculaire, mais j'adore la monture de lunettes d'écaille. C'est un truc Ironman (if Google translate let me down there that is so embarrassing ) They are also saying they do prescription sports wraparounds, which is quite rare I think.

[nicolasdu92130]

Cool. Tony Stark is wearing Japanese Matsuda sunglasses in Ironman 3 which even have a seal. Let us know how you it goes with the glasses, Nicolas. Because you are Parisian, we are relying on you for style here x

Lol ok so here are the glasse that i plan to get:

http://demetz.fr/sport/modele/plein-air/full/ (special for dry eye)

they are ok as sunglasses okay but i will have clear glasses so it will be very very ugly, will be complicated but have to wear this, but its all or nothing.
I prefer having a total protection and look very odd than having a partial protection and look a bit odd^^.

[littlemermaid]

Cool. Tony Stark is wearing Japanese Matsuda sunglasses in Ironman 3 which even have a seal. Let us know how you it goes with the glasses, Nicolas. Because you are Parisian, we are relying on you for style here x

[nicolasdu92130]

yes tonight i thought about it and yes i have to wear something to protect my eyes, because if not they will never heal ( i should have made that reflection sooner, because before i would not accepted to look odd ect...)
So today i wil go to glasses shop to look for what they have and i have a "justification" for wearing skiing glasses, when people will ask me:

" i have an operation of the eye during August and i have to wear protective glasses for a few months" ( i will use some technical words to impress and in order for them to understand)
Transition lenses i know about it, but first able i will try to find wilex and then i will ask about it.


I search and yes ricin oïl=castor oïl. i tried them yesterday and my eyes don't like it, it irritates them and it burn/dry my eyes. So i won't try it again, my eyes have already suffered too much^^. Moreover i read a study that demonstrate the cytotoxic stuuf associated with castor oïl... So i guess its like all the eye drop, for some poeple its good, for others its not.

[littlemermaid]

Nicholas, you think Tom Cruise looks cool in his Wiley X sunglasses in his Mission Impossible? i think yes. Also Google image 'ironman sunglasses' and tell me what's not to like. Transition lenses are amazing from daylight to indoors - do you have them in Paris?

What is this eye drop, I wonder? Is it castor oil? Interesting.

He told me to wear protective glasses, but its impossible in class lol, i can't arrive with skiing glasses in class.

Impossible? No. But tough to do socially, yes

I totally get that it's hard to bring yourself to wear anything on your face, like skiing glasses hehe, in public, when it will look odd. But have you considered wearing something like Wiley X sunglasses?

Yes, they still stand out, but way less than skiing glasses - so many of us have been helped by wearing protective glasses... you should consider giving them a try.

[nicolasdu92130]

Good luck with you appointment tomorrow!
Hopefully this dr. Serge doan can help you.
Please Keep us informed about your experiences..

Patrick..

Okay so jhave just cameback from the appointment and, disappointed because the doctor was in a hurry...
he looked at my eyes, looked at the report from the CIC and just said that indeed my lacrymal film is very instable and he might do in 5 months or so allergic test directly in my eyes.
He told me to wear protective glasses, but its impossible in class lol, i can't arrive with skiing glasses in class.
He also prescribed a RICIN OIL eye drop ( i d=never heard about that before ??) 4 times a day.
So a bit disapointed because i had like ten questions for him and i did not have the time to ask one, the appointment last like 3 mins or so.

really hope that ricin oil will help ^^

[patrick]

Good luck with you appointment tomorrow!
Hopefully this dr. Serge doan can help you.
Please Keep us informed about your experiences..

Patrick..

[nicolasdu92130]

ok just a quick update about my eyes: i have been on that treatment for 2 weeks and nothing has changed... in fact my eyes burns more than usually ( maybe its because of the preservative in the steroid drop ). So i'm a litte depressed about it, i hoped i would have been a lot better by now but not (very anxious about the back-to-school in 1.5 week)^^.
However tomorrow im going to see one of the two specialisst of dry eyes in France, Serge DOAN, i hope he will help me, finger crossed .

[patrick]

Hello.
Thanks for your reply.
First time i went to prof baudouin it took 3 months before they were able to give me an appointment. That was fine with me. I was not in a hurry.
If i decide to go to this clinical center of investigation i won't forget to mention its an 'emergency'. A little lie for my own sake won't hurt anybody i guess. Thanks for the suggestion.

I think it is a bit surprising you have (very) good schirmer results, i think 25 mm in 5 mns is a lot,and still a tbut of just 5 seconds. Thats a lot of tears evaporating very fast.

Anyway,I hope for you that your current regimen will result in long lasting if not permanent relief of your pain.

Patrick..

[nicolasdu92130]

ah its pretty sad to read this, seems that all the "basic" ophtalmo have the same opinion on dry eyes, they don't even consider that treatments and technology about dry eyes have evolved (like lipiflow, that HRT device ect).

About the Quinze vingt HOspitals, you need to take an appointment ASAP because delays are long.Moreover you should mention that you have already been received by Baudouin + mentions that this is a emergency, that you don't have the help that you need in your country.

The "emergency" mention is very important, do not hesitate to be alarmist : when i took my appointment to the Clinical Center Of Investigation (it was in June) they told me they have nothing before OCTOBER. So, i lied, i said that the assistant who was followed me said that it was an ermegency and i got a appointment at the beginning of August !!!

About the Clinical Center of Investigation, its very very good, people are nice and they know what they do. They, first of all, give me a paper with questions about my dry eyes symptoms then they ask me about my "dry eyes story" then did a Schirmmer, the HRT exam (they explained me all the pictures they had took), then a complete exam with the slit lamp (TBUT, lids, MG ect) and then the treatment.

Moreover, i have just received the report of my exams (those people are serious), so here it is: -schirmer 25mn in 5 mn
-BUT 5 sec in both eyes
-A lot of inflammation
-Allergy
-mild blepharitis
-papillas and other stuff that i don't know
So hope you will get soon into the CIC's hands