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Young French dry eye sufferrer

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  • Young French dry eye sufferrer

    Hello everyone, first of all sorry for my not perfect english, i'm nicolas and i'm 20. i'm doing intense studying at school and within 2 month i'm gonna take my exam. So here is my story:
    1 year ago i noticed red veins in my eyes ( i had been wearing contacts for 2 years) and i just said to myself it was because i was used to wearing them for too long,and i thought that it was common for all the pople who wore lenses so i just let it go. But 2 month later i had remarks about it, the veins were still there and more numerous. So i went to the ophtalmologist told me to use new lense, didn't work... my problem was just worsening so i went to an other ophtalmologist who gave me artificial drop...didn't work. At that point i started to be very concerned about it and it deeply affected my mood.I decided to stop wearing my contact and i buy glasses and i felt, for the first time of my life, a terrible feeling of dryness, the wind was just killing me...Then i went to several anothers opthalmologists: told me i had ocular allergie, the drops never worked (just worsened my dry eyes)... they also give me the best artificial drop(5 mn of relief...didn't work). I was so depressed i didn't know what to do...then i discovered this forum and i started to change some things: i started warm compresses (with water at first but now with sock rice), i took omega 3, tried to have a good sleep , drink more water ect... It didn't change anything, my dry eyes were just slowly worsening. At that time, i was VERY depressed( i have just isolated myself because now i'm not like normal people, i can't do what a nomal young people of my age do, and moreover nobody understant what you are going through), thought about suicide, (my dry eyes were at their worse, the slightest air movement was just killing my eyes).
    So five days ago my mother and i went to the very famous hospital Quinze Vingt, they said i had a SEVERE dry eyes syndrome and a lot of inflammation and put me on Cyclosporine 0.05% twice a day, they told me to come to see them after 3 months of treatment,and to see a psychologist because the first month will be hard,they also said i was not alone in my case, it was good to hear. It burns a lot but i have to resist, its my only chance.
    So here is my new routine :

    doxycyline 100mg a day
    1600 epa 500 dha a day ( i decided to go with high doses since normal doses didn't work)
    hyaluronate drops
    a tea spoon of flaxessed oil
    cyclosporine 0.05 2x a day
    a multivitamin (who knowns ?)
    warm compress(rice + microwave) twice a day ( i don't kown how your compress stay hot for 5 or 10 minutes.. mines start to cool down after 3 mn...)
    one humidifier

  • #2
    Hi Nicolas,

    Keep in mind that the regime you are going through is not your only chance. There are more thing to try.

    In your shoes I would try to understand why this is happening to your eyes, what is wrong... hormones, vitamins, nutrition. Probably there is something going worng in your body.
    It is not easy t find a doctor or a health professional with that holistic approach, but I think it is worth trying to find a good one.

    bests

    Comment


    • #3
      hi bakunin thx for the reply
      yes i know there is anothers possibilities of treatments but i just want my lie back so bad, everyone around me are making their life while i'm stuck with those miserable eyes.
      i also read in dr latkany book that cyclosporin was very good for people with a lot of inflammation like me (red eyes all the time) and the treatment was given to me by Dr Baudouin a specialist of dry eyes, so i trust him and hope it will work.
      I strongly believe my dry eyes have been causes by overuse of lenses and now i get the consequencies. Otherwise i have a good diet make some sport and alrready had my blood cheked everything is fine... so i don't know
      and i noticed that my meibomian glands are very clogued, i can see it, thats why my eyes are so inflammed, but warm compresses don't seem to work...

      Comment


      • #4
        Originally posted by nicolasdu92130 View Post
        hi bakunin thx for the reply
        yes i know there is anothers possibilities of treatments but i just want my lie back so bad, everyone around me are making their life while i'm stuck with those miserable eyes.
        i also read in dr latkany book that cyclosporin was very good for people with a lot of inflammation like me (red eyes all the time) and the treatment was given to me by Dr Baudouin a specialist of dry eyes, so i trust him and hope it will work.
        I strongly believe my dry eyes have been causes by overuse of lenses and now i get the consequencies. Otherwise i have a good diet make some sport and alrready had my blood cheked everything is fine... so i don't know
        and i noticed that my meibomian glands are very clogued, i can see it, thats why my eyes are so inflammed, but warm compresses don't seem to work...
        Hi Nicolas,

        I was not the kind of person that use to eat badly. Vegetarian for 16 years, my blood tests have been awlays perfect. But we eat a lot of toxic stuffs in food nowadays. I'm doing better with a change in nutrition. No more wheat and gluten (I ate a lot of it all my life). Well, there are a lot of good info on this forum about the links between gts, dry eyes, nutrition etc.

        I think I can imagine the hell is being this way in your age. My dry eyes onset was in the age of 37, but it would be more even more devastating if I was in my 20s.

        keep strong, read about it and try to listen what your body says.. I think it can help to find the best way to improve.

        best wishes

        Comment


        • #5
          Originally posted by bakunin View Post
          Hi Nicolas,

          I was not the kind of person that use to eat badly. Vegetarian for 16 years, my blood tests have been awlays perfect. But we eat a lot of toxic stuffs in food nowadays. I'm doing better with a change in nutrition. No more wheat and gluten (I ate a lot of it all my life). Well, there are a lot of good info on this forum about the links between gts, dry eyes, nutrition etc.

          I think I can imagine the hell is being this way in your age. My dry eyes onset was in the age of 37, but it would be more even more devastating if I was in my 20s.

          keep strong, read about it and try to listen what your body says.. I think it can help to find the best way to improve.

          best wishes
          Bakunin-Just a thought, IMO you might not want to say things like it would be devastating to get DE in your 20s. This is a reality for a lot of people on this board and I feel like comments like that don't really help. I'm 30 and have had DE for a few years for some perspective. I only mention this because you post a lot of insightful stuff and I'm sure you wouldn't want to make anyone feel bad.

          Comment


          • #6
            I agree with Kate, I am 24 and the comment u made kinda made me feel like ****. Like it is worse for us that r young.. But maybe because we r younger, we will heal more quickly! I know u didn't mean to say it but it kinda hurt..

            Comment


            • #7
              Nicolas, So happy to hear that you have Prof Baudouin and his team helping you, and hope you get comfort and improvement soon. We have people here of all ages, even parents of very young children and babies suffering with corneal dystrophies, autoimmune disorders, or after infections, so unfortunately age has nothing to do with cornea and dry eye problems and we all want to be mutually supportive and kind here in the difficult times. Very warm hug to you from London, and keep yourself well until the healing starts as the inflammation reduces. I'm sure you know to keep your study room humid and protect your eyes. I feel that the achievements we have are extra special when life is like this x
              Paediatric ocular rosacea ~ primum non nocere

              Comment


              • #8
                Originally posted by Katewest View Post
                Bakunin-Just a thought, IMO you might not want to say things like it would be devastating to get DE in your 20s. This is a reality for a lot of people on this board and I feel like comments like that don't really help. I'm 30 and have had DE for a few years for some perspective. I only mention this because you post a lot of insightful stuff and I'm sure you wouldn't want to make anyone feel bad.
                Hi Kate,

                probably I didn't express myself properly.

                I wanted mean I understand how he feels... as we here on this board use to understand what each other feels. So, that is it. I think I understand how is tough dealing with this disease, and how tougher it should be having it in the youth.

                And yes, I agree with Faith1989. Probably a young person is easier to get cured, like in all diseases.

                Comment

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