Announcement

Collapse
No announcement yet.

Great news for those who suffer from pinguecula / ptegyrion !

Collapse
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • crev177
    replied
    Originally posted by michelle555 View Post
    Steve, has Moshe told you anything that we have not heard from shira?

    Crev, that is so amazing!!! So happy for you! Did you need a prescription from you dr to have the drops made? I am in the US and I am thinking about contacting a compounding pharmacy but I think I would need a prescription from my eye dr and I doubt she will do it. How long have you had your pings for?
    Hi Michelle, yes I had to get a prescription, unfortunetly my family doctor turned me down and didn't give me the prescription BUT I went go see the nicest optometrist and she gave me the prescription, here in Ontario Canada optometrist can prescribe eye medications so the pharmacy was OK with it, not sure how is it in the states though but I wish you good luck! Let me know if you do get them!

    Leave a comment:


  • michelle555
    replied
    Steve, has Moshe told you anything that we have not heard from shira?

    Crev, that is so amazing!!! So happy for you! Did you need a prescription from you dr to have the drops made? I am in the US and I am thinking about contacting a compounding pharmacy but I think I would need a prescription from my eye dr and I doubt she will do it. How long have you had your pings for?

    Leave a comment:


  • crev177
    replied
    Originally posted by ClaireW View Post
    Hi Steve just read this post too! Believe we'll be chatting to Moshe soon too!

    Crev - wow incredible news to hear they are nearly all gone! Please please please send pics through, it'll give this downhearted girl hope!

    If it's easier to send pics via email then please send it to Claire.m.williams86@gmail.com

    Where are you based as way of interest?
    Hi Claire, I promise you I will post pics tomorrow or the day after, cheer up! There is hope! I think that if you don't want to wait until medinsight you should find a pharmacy that can help you with this, just show them the case report and the patent, they should be able to make them, they are not hard to make. I live in Canada by the way.
    Good luck.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Originally posted by steveyez View Post
    Hi Claire

    Ive been chatting to Moshe for a few months - he's the main man for medinsight and for this research and he's very very helpful

    Cheers Steve
    Hi Steve just read this post too! Believe we'll be chatting to Moshe soon too!

    Crev - wow incredible news to hear they are nearly all gone! Please please please send pics through, it'll give this downhearted girl hope!

    If it's easier to send pics via email then please send it to Claire.m.williams86@gmail.com

    Where are you based as way of interest?

    Leave a comment:


  • steveyez
    replied
    Originally posted by ClaireW View Post
    Hi everyone.

    MedInSight got back to me saying she will ask a gentleman called Moshe (I'm not sure what his role in the company is - might be a question to ask!) all our questions about the drops.

    Anyone who has last minute questions please post them on the new thread I started titled 'to those who have an interest in the dipyridamole drops' - tomorrow afternoon is the deadline.
    Hi Claire

    Ive been chatting to Moshe for a few months - he's the main man for medinsight and for this research and he's very very helpful

    Cheers Steve

    Leave a comment:


  • crev177
    replied
    Originally posted by ClaireW View Post
    Hi everyone.

    MedInSight got back to me saying she will ask a gentleman called Moshe (I'm not sure what his role in the company is - might be a question to ask!) all our questions about the drops.

    Anyone who has last minute questions please post them on the new thread I started titled 'to those who have an interest in the dipyridamole drops' - tomorrow afternoon is the deadline.
    Hey! In my case I've been using the drops for almost 2 weeks and, wow! They are almost gone! The veins are less enlarged and my eyes feel refresh all the time will post pics later!

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Hi everyone.

    MedInSight got back to me saying she will ask a gentleman called Moshe (I'm not sure what his role in the company is - might be a question to ask!) all our questions about the drops.

    Anyone who has last minute questions please post them on the new thread I started titled 'to those who have an interest in the dipyridamole drops' - tomorrow afternoon is the deadline.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Originally posted by realMadridFTW View Post
    Fourth month of treatment.
    No change, my eyes are no longer red but pinguecula is always present
    It has not decreased in size and has not changed color.
    Hi,

    I'm sorry to hear nothing has happened to the pings yet - give it a bit more time. On the research study did it say it took up to a year?

    With the veins have they faded or disappeared completely?

    Leave a comment:


  • realMadridFTW
    replied
    Fourth month of treatment.
    No change, my eyes are no longer red but pinguecula is always present
    It has not decreased in size and has not changed color.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Originally posted by crev177 View Post
    Hi claire, my eyes are less irritated and the veins look better, the pinguecula is very mild but enough for me to notice them, my vision is good so no issues on that, I think that if you are able to find a compounding pharmacy that can help you with the drops you should go ahead and give it a shot, worst thing that can happen is that it may not do anything, and there is a great possibility that it will help you, wish you all the best.
    I will post an update in a week and will let you guys know the progress.
    Hey thanks for your hasty response!

    Any chance you can post pics of your progress so we can see how they've worked?

    Hope they keep getting better and better! RealMadrid how are you doing?

    Leave a comment:


  • crev177
    replied
    Originally posted by ClaireW View Post
    Crev177 - great news to hear your eyes are feeling better, how are they looking? I'm still chasing MedInSight (very frustrating) to those interested I started a new thread on here titled 'to those interested in dipyridamole drops' I will post any updates there.

    I'm trying my best to hold out for the company to respond, but fearing they will drag it out another few months. May have to order some from you and realMadrid at this rate!
    Hi claire, my eyes are less irritated and the veins look better, the pinguecula is very mild but enough for me to notice them, my vision is good so no issues on that, I think that if you are able to find a compounding pharmacy that can help you with the drops you should go ahead and give it a shot, worst thing that can happen is that it may not do anything, and there is a great possibility that it will help you, wish you all the best.
    I will post an update in a week and will let you guys know the progress.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Originally posted by crev177 View Post
    Hey guys,
    In my case I think I developed pinguecula because since I was very little I used to spend most of my time outdoors and I was living in a very sunny place, I think I developed pinguecula when I was around 13-14!! But I started noticing like when I was 18-19,I'm 22 almost 23 now, Its very mild but still its not Lt pleasant.
    Anyways I had 2 compunding pharmacies deliver me the eye drops, the first formulation I think it didn't much to me, but the second one, I asked the pharmacy to make the drops superconcentrated , and I started using this yesterday and let me tell you what a difference, my eyes feel so refresh now, and hopefully in a few days the veins will be gone.
    The only issue is that the pH that patetnt states, did not work when the pharmacist made the drops, so she had to lower even more the pH to 5.6! It stings for a bit but it is just momentarily.
    I wish you guys all the best and don't let this annoying thing disturb you!!
    Crev177 - great news to hear your eyes are feeling better, how are they looking? I'm still chasing MedInSight (very frustrating) to those interested I started a new thread on here titled 'to those interested in dipyridamole drops' I will post any updates there.

    I'm trying my best to hold out for the company to respond, but fearing they will drag it out another few months. May have to order some from you and realMadrid at this rate!

    Leave a comment:


  • crev177
    replied
    Hey guys,
    In my case I think I developed pinguecula because since I was very little I used to spend most of my time outdoors and I was living in a very sunny place, I think I developed pinguecula when I was around 13-14!! But I started noticing like when I was 18-19,I'm 22 almost 23 now, Its very mild but still its not Lt pleasant.
    Anyways I had 2 compunding pharmacies deliver me the eye drops, the first formulation I think it didn't much to me, but the second one, I asked the pharmacy to make the drops superconcentrated , and I started using this yesterday and let me tell you what a difference, my eyes feel so refresh now, and hopefully in a few days the veins will be gone.
    The only issue is that the pH that patetnt states, did not work when the pharmacist made the drops, so she had to lower even more the pH to 5.6! It stings for a bit but it is just momentarily.
    I wish you guys all the best and don't let this annoying thing disturb you!!

    Leave a comment:


  • michelle555
    replied
    I'm 27 and I noticed my first one about 7 months ago and then another small one shortly after in the other eye I have always had dry eyes but they got much much worse right before the pings formed. I hate them so much and they are getting worse by the day it seems. REALMADRID how is the treatment going? Are your pings any better??

    Leave a comment:


  • iredeye
    replied
    43 and I could not remember when i started having dry eye. I just started noticing the pinguecula about a year ago. Now I'm really concious about it. Don't like looking at people in the eye or try to avoid the eye contact. I hope this med is really make thing better for pinguecula patients.

    Leave a comment:

Working...
X