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Hello, I’m Carl a 44 year old male from the UK and a year ago I started getting these excruciating pains in both my eyes which after numerous attendances to a&E and the emergency eye clinic I now know are recurrent corneal erosions.
The drops help throughout the day, Hycosan Extra work best for me but at night time the ointments no longer work, have tried Lacrilube and Vita pos. In April I ended up with very large erosion that stopped me from opening either eye for over 24 hours due to the pain being so severe.
I was seen in the emergency eye clinic and was given a corneal scrape, debridement I believe it’s called and a band aid lense fitted.
They also stated it looks like I have map dot dystrophy and would refer me to see a specialist.
After the lens was removed the erosions started again and now while I’m still waiting to see the specialist over these past three months I’ve endured waking up two to three times during the night in agony as my eyes keep ripping while I’m asleep. I put the ointment in at night – lots of it – then I wake up in pain add drops, then again a few hours later it occurs again.
The other day I actually woke up needing the toilet and my eyes were still shut but I could feel my eye balls were stuck to my lids.
Does anyone know how to stop this happening, or is it at the point where I need to wait and see what the specialist says?
In addition around once a month I get a massive blister in my eye on either the left or right of the pupil, happens in both eyes, it eventually goes down after I keep adding lots and lots of eye drops, has any one any experience of this or know what it is?
I have also noticed my glasses prescription seems to have changed in the eye I had the debridement in, is this a side effect of the procedure or the ongoing result of all the nightly trauma I’m going through?
Sorry for all the questions, I always keep hydrated (four to five pints of water a day) eat a well-balanced diet and I’m at a loss to find a way to stop these erosions from happening every night and wish I could get my eyes back to normal after a year of pain and tiredness.
The drops help throughout the day, Hycosan Extra work best for me but at night time the ointments no longer work, have tried Lacrilube and Vita pos. In April I ended up with very large erosion that stopped me from opening either eye for over 24 hours due to the pain being so severe.
I was seen in the emergency eye clinic and was given a corneal scrape, debridement I believe it’s called and a band aid lense fitted.
They also stated it looks like I have map dot dystrophy and would refer me to see a specialist.
After the lens was removed the erosions started again and now while I’m still waiting to see the specialist over these past three months I’ve endured waking up two to three times during the night in agony as my eyes keep ripping while I’m asleep. I put the ointment in at night – lots of it – then I wake up in pain add drops, then again a few hours later it occurs again.
The other day I actually woke up needing the toilet and my eyes were still shut but I could feel my eye balls were stuck to my lids.
Does anyone know how to stop this happening, or is it at the point where I need to wait and see what the specialist says?
In addition around once a month I get a massive blister in my eye on either the left or right of the pupil, happens in both eyes, it eventually goes down after I keep adding lots and lots of eye drops, has any one any experience of this or know what it is?
I have also noticed my glasses prescription seems to have changed in the eye I had the debridement in, is this a side effect of the procedure or the ongoing result of all the nightly trauma I’m going through?
Sorry for all the questions, I always keep hydrated (four to five pints of water a day) eat a well-balanced diet and I’m at a loss to find a way to stop these erosions from happening every night and wish I could get my eyes back to normal after a year of pain and tiredness.
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